International Coalition to Stop Designer Babies

International network of concerned citizens and activists seeking to prevent the legalisation and normalisation of designer babies #stopdesignerbabies

[International Coalition to Stop Designer Babies @Stop_D_B]

See the great report on Human genome editing by @GeNetzwerk, from a feminist and anti-eugenic perspective.
"The regulation of research into and use of heritable genome editing must ... be an international issue"
https://t.co/nOitBpZgjC

[Genetics and Society @C_G_S]

With more indications than ever that scientists can’t be trusted on heritable gene editing, public discussion is needed to consider proposals for a moratorium or a complete ban. 3/3
https://t.co/I25KULEWbJ

[Genetics and Society @C_G_S]

Despite more evidence of the risks of heritable genome editing and of public disapproval of the technique, some scientists continue to forge ahead with heritable genome editing efforts, made all the more risky through the use of AI. 2/3

[Genetics and Society @C_G_S]

Five years ago, the world learned that Chinese scientist He Jiankui had created the first children whose DNA had been tailored using gene editing before they were born—–a discovery that shocked and horrified the global scientific community. 1/3

[International Coalition to Stop Designer Babies @Stop_D_B]

An excellent piece from @GMWatch on the last #HGESummit.
#stopdesignerbabies #GMO #eugenics #CRISPR #geneediting #HHGE

[GMWatch @GMWatch]

Human genome editing summit haunted by spectre of eugenics https://t.co/xZmegmFYlG

[Genetics and Society @C_G_S]

The Closing Statement from the Third International Summit acknowledges the importance of paying attention to the “whether” (not just the “how”) of heritable genome editing. @FrancoiseBaylis https://t.co/frn7uaScjR

[GENetwork @GenEngNetwork]

Human genome modification : tenuous safeguards - Inf'OGM https://t.co/NrNau8WKtQ

[International Coalition to Stop Designer Babies @Stop_D_B]

Thank you @gracefbrowne @WIRED to report on our protest at the #HGESummit and confirm that Human Genetic Modification is not a given.
It can (and should) still be refused.
#stopdesignerbabies #GMO #eugenics #CRISPR #geneediting #HHGE
https://t.co/GRjcMiCPCQ

[Physicians & Scientists for Global Responsibility @PSGRNZ]

An important Declaration. We support the existing strong international consensus against genetic modification of human beings. Thank you @GenEngNetwork @biorespect @asso_sc @C_G_S @Stop_D_B @GeNetzwerk

[International Coalition to Stop Designer Babies @Stop_D_B]

Can all confirm that conversation around HHGE is about WHETHER it should be used, and that you'll accept the possible conclusion that it should NOT? #HGESummit
@JavierHGuzmanC @ewanbirney @G_Q_Daley @DariaJulkowska @juliemakani @NaldiniLab @CorOosterwijk @lily_paemka @Mayanazatz

[Genetics and Society @C_G_S]

Despite efforts to convince us so, heritable genome editing is not inevitable. More groups and broader coalitions than ever before are working to oppose heritable genome editing. Hear directly from those who oppose it in our recent symposium: https://t.co/HtWvaPigRL

[International Coalition to Stop Designer Babies @Stop_D_B]

Dr. D. King from @Stop_D_B, in npr, on the #HGESummit: "The approach taken by the organizers of the summit is an extreme case of scientific irresponsibility, and an unwillingness to accept that society has any right to set ethical limits upon science" https://t.co/2Md0Iwi6IF

[International Coalition to Stop Designer Babies @Stop_D_B]

Thanks to Pr @FrancoiseBaylis for confirming that according to the final statement of the #HGEsummit, HHGE is only a possibility and can STILL be refused.
Let's hope all the other members of the Organising Committee will react along the same line.

[International Coalition to Stop Designer Babies @Stop_D_B]

6/ This is important.
If no one is ready to accept the possible conclusion that HHGE should NOT be used, then this process of science summits and public engagement like @ArrigeOrg @GlobalCitzAssem @WeAreSama @GenomeObserv is useless, because it means the decision is already taken

[International Coalition to Stop Designer Babies @Stop_D_B]

1/ Yesterday at the last panel of #HGESummit @TheCrick chaired by R. Lovell-Badge, for the first time in all the sessions of the summit the most popular question on Slido was not asked to the panel.

[International Coalition to Stop Designer Babies @Stop_D_B]

5/
David Baltimore
Alta Charo
Chris McCabe @IHE_Canada
Michèle Ramsay @SBIMB1
Elisa Reis
Haoyi Wang
@JavierHGuzmanC
@ewanbirney
@FrancoiseBaylis
@G_Q_Daley
@DariaJulkowska
@juliemakani
@NaldiniLab
@CorOosterwijk
@lily_paemka
@Mayanazatz
@doudna_lab

[Genetics and Society @C_G_S]

Some high-profile scientists are eager to make heritable genome editing legal. Here are 5 reasons to oppose it: