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STOPRARE
@stopraredisease
Improving the lives of patients with rare diseases
Joined May 2010
11
Following
13
Followers
21
Posts
STOPRARE
@stopraredisease
almost 16 years ago
http://fb.me/z1vkIwu2
STOPRARE
@stopraredisease
almost 16 years ago
http://bit.ly/brhl7D...-rt10317-malattie_rare_ipertensione_arteriosa_polmonare_esperti_a... http://fb.me/AeM5dxNM
STOPRARE
@stopraredisease
almost 16 years ago
Do you have a child with a rare disease? Find support through the Children's R.a.r.e. Disease Network blog:... http://fb.me/BJte47X0
STOPRARE
@stopraredisease
almost 16 years ago
Gene mutations linked to rare bone disorder discovered:... http://fb.me/CzaoIahZ
Who to follow
Oxalosis & Hyperoxaluria Foundation
@OHFTweet
The OHF is dedicated to finding treatments and a cure for all forms of hyperoxaluria. Research is the driving force behind our mission!
TheLAMFoundation
@LAMFoundation
Delivering facts about #LAM #RareDisease and The LAM Foundation. We're dedicated to funding research, advocacy and awareness to improve the QoL for all LAM pts.
IFOPA
@ifopa
Fund research to find a cure for FOP while supporting individuals and families through education, public awareness and advocacy.
STOPRARE
@stopraredisease
almost 16 years ago
Find out more about the treatment here: http://fb.me/B5zRhKQW
STOPRARE
@stopraredisease
almost 16 years ago
The mother of twins with Niemann-Pick Type C (NPC) petitions the FDA to use innovative treatment. Find out more... http://fb.me/ByFSnHZE
STOPRARE
@stopraredisease
almost 16 years ago
"New gene technique can identify rare diseases quickly" http://bit.ly/9c7h8D
STOPRARE
@stopraredisease
almost 16 years ago
Advocates for organ donation: San Francisco Bay Area twins survive Cystic Fibrosis thanks to lung transplants. Read... http://bit.ly/aJkM3K
STOPRARE
@stopraredisease
almost 16 years ago
Treating TB in the US http://bit.ly/9R1UIs
STOPRARE
@stopraredisease
almost 16 years ago
http://bit.ly/cdwtsg
STOPRARE
@stopraredisease
about 16 years ago
June is Myasthenia Gravis Awareness Month in the US. Find out more about this autoimmune neuromuscular disease from... http://bit.ly/aWLdPh
STOPRARE
@stopraredisease
about 16 years ago
Asbestos exposure for mechanics? Read more: http://www.asbestosvictimadvice.com/asbestos-in-auto-driving-danger/ http://bit.ly/asSJsU
STOPRARE
@stopraredisease
about 16 years ago
NIH grants 1.16 million dollars to Northwestern professor to develop a treatment for drug resistant Tuberculosis... http://bit.ly/aLt8xj
STOPRARE
@stopraredisease
about 16 years ago
Osteogenesis, also known as Brittle Bone disease, causes loose joints, badly toned muscles and easily fractured... http://bit.ly/bcjYyr
STOPRARE
@stopraredisease
about 16 years ago
"Siglata la convenzione per lโistituzione del Centro di formazione malattie rare For.Ma.Re." http://bit.ly/bGvPd3
STOPRARE
@stopraredisease
about 16 years ago
"Joint Study By Rosetta Genomics And NYU Langone Medical Center Identifies Potential MicroRNA Drug Target For... http://bit.ly/bJ8aJg
STOPRARE
@stopraredisease
about 16 years ago
"Joint Study By Rosetta Genomics And NYU Langone Medical Center Identifies Potential MicroRNA Drug Target For... http://bit.ly/9guAgc
STOPRARE
@stopraredisease
about 16 years ago
Joint Study By Rosetta Genomics And NYU Langone Medical Center Identifies Potential MicroRNA Drug Target For... http://bit.ly/daBZih
STOPRARE
@stopraredisease
about 16 years ago
More Cystic Fibrosis patients are surviving past their forties. Read more:... http://bit.ly/dsJ9ZV
STOPRARE
@stopraredisease
about 16 years ago
Tuberculosis: the deadliest neglected disease? Read more at http://www.physorg.com/news193432561.html http://bit.ly/bSjsqX
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