samira chandani

Caregiver / Patient Partner

[samira chandani @sugrabai]

@BeverleyPomeroy @CIHR_IRSC Great idea, Count me in

[Annette McKinnon @anetto]

Vivid language from @HarlanPruden today at #PPF23
“ your budget is a statement of value“ (patient reviewers can use this to evaluate patient engagement in research grants)
“All knowledge is relational”
“Capacity bridging”
“My (Harlan’s)knowledge system is pushing back”

[Annette McKinnon @anetto]

Still puzzled by #LHS (Learning Health Systems)? @LLi_1 gives us key LHS Enablers and then 3 critical components. #PPF23

[SE Health @SEHealth_SEHC]

On #WorldMentalHealthDay, let’s celebrate life care as a journey. Let’s prioritize well-being, embrace self-care, & reach out to others with kindness. Together, we can work with purpose to nurture people and communities. #HopeAndHappiness #PeopleEverything #LifeCare

[samira chandani @sugrabai]

@EddyNason @DrCathyCraven @PiPER_UHN @CocowithaK Attended #PiPER2023 where the toolkit was presented

[Dr. Dawn Richards, PhD @TO_dpr]

Consider how this sets the tone and reinforces a power differential from the start. Think about how you can change the approach to these intro’s where everyone shares something personal (in a safe way) outside of their work expertise. 2/2 #PIPER2023

[Cathy Craven @DrCathyCraven]

Very grateful to the many people with lived experience who contributed to the development of our PER toolkit! Your voice and advocacy are truly appreciated! @piper_uhn #PiPER2023

[Dr. Dawn Richards, PhD @TO_dpr]

Do you ever think about how intro’s happen at a first meeting of research teams that include #PatientPartners? Consider how the academic folks list their credentials and accomplishments while patients may disclose health and disability status, etc. 1/2 #PIPER2023

[Linda Li @LLi_1]

Community Engagement in Research: An Updated Systematic Review of Quantitative Engagement Measurement Scales for Health Studies - Barbara Gordon, Kristin M. Van De Griend, Victoria L. Scharp, Hannah Ellis, Mary A. Nies, 2023 https://t.co/uLliSx1uiS

[Linda Li @LLi_1]

@anetto - "Co-leadership is a possibility. We are trailblazers!"

#OSSUResearchDay2023

[MSSU @maritimespor]

Thank you @LindaaWilhelm 👏What an informative and powerful patient story on how patient partners can help researchers focus on what's most important to patients. Learn more about: #PatientOrientedResearch https://t.co/yZlKjiwKqu #LivedExperienceMatters

[samira chandani @sugrabai]

@LLi_1 Equal partnership

[Annette McKinnon @anetto]

@RochonPaula suggest we think about the hundreds of thousand of pills 💊 that are being split in #LTC due to side effects of common dosages, which can be related to age and gender. #OSSUResearchDay2023

[samira chandani @sugrabai]

@LLi_1 Great partnership!

[Ottawa Methods Centre @OttMethodsCentr]

Language is often forgotten when thinking about social determinants of health - @PTanuseputro speaking at #OSSUResearchDay2023

[OSSU Tweets @OSSUtweets]

What is being counted in data, who is responsible for identifying the data that is missing and what is that missing data? How to prioritize & engage patients simultaneously/in parallel to provide #patientoriented care and improve policy. #OSSUResearchDay2023

[OSSU Tweets @OSSUtweets]

#OSSUResearchDay2023 @wwodchis asks how to address and include communities to a better extent to/for impact #patientorientedresearch. Recruitment important, including from the beginning crucial. Diversity in advisory groups. Connections with community organizations important.

[OSSU Tweets @OSSUtweets]

Divya Mathura on #trust as #patientpartners with Indigenous and First Nation communities. Need to mitigate trauma: listening, learning about culture and traditions, and respecting knowledge systems. Broadening communication & skills to partner for impact. #OSSUResearchDay2023

[OSSU Tweets @OSSUtweets]

@SPORAlliance #patientorientedresearch is trailblazing and more can happen to create impact for #health #healthcare #healthresearch #healthservices #OSSUResearchDay2023

[Annette McKinnon @anetto]

In a slide from 2022, a look at the Learning Health System as a wobbly stool. A larger and more defined role for patients is needed to balance #LHS #OSSUResearchDay2023. ⁦Maureen Smith credit⁩