Sumeeta

Physician, #hapc via #radonc
#pwME via #LongCovid
She/her

[Sumeeta @sv1121]

@01sth02 @arghavan_salles And if you have Amazon Prime, you can get a free year of Grubhub+ (no delivery fees and drastically reduced "other" fees)

[Sumeeta @sv1121]

@brandondataguy @cjmaddison Sometimes I think (hope) articles like this are published as clickbait, because making people mad and marvel at your stupidity gets a lot of "engagement." But that may be wishful thinking

[Sumeeta @sv1121]

@dysclinic On an individual, psychological level, sure, we may have to adapt to the possibility of never getting better. But if these writers stopped to think about it for even a moment, I don't think they'd actually want me out of the workforce forever, much less me x 4 million

[Sumeeta @sv1121]

@dysclinic And the magnitude of disability among working-age people caused by this disease makes "let's just call this the new normal and adapt" a bad call, not for us as individuals, but for the society we're not participating in or contributing to as much as we previously could.

[Sumeeta @sv1121]

@exceedhergrasp1 @InflammaSean That's the one!

[Sumeeta @sv1121]

@InflammaSean @exceedhergrasp1 "experience"?

Perhaps not ideal bc most aren't researching the subjective experience of the thing, but the thing is an experience some humans have.

"phenomena they have no experience of"?

[Sumeeta @sv1121]

@LGrisaru @chrisdancy @ziibiing @AutSciPerson We know the electronic record is often incomplete or wrong. It's only as good as the person inputting the data, and that's...us

[Sumeeta @sv1121]

@AlexJohnLondon @rinireg @itaisher I think I'd be more focused on the possibility of P being in some sense pernicious, or being used for some pernicious purpose, than on P being false.

It could lead me to deprioritize the promotion of P or time/energy spent on P-related matters, while still believing P is true

[Sumeeta @sv1121]

@PutrinoLab @tuppersquares @dysclinic Inpatient care is conceived of (&paid for) as for pts who need things that can't be done in an outpatient setting, w little regard for the actual availability of the outpatient services. The barrier isn't just perception of LC, but the entire structure of modern hc systems

[Sumeeta @sv1121]

@PutrinoLab @tuppersquares @dysclinic You might be right that that would be the best approach, but it's just not the sort of thing our healthcare system is currently structured for, for any illness.

[Sumeeta @sv1121]

@BethH_persist @fitterhappierAJ @PutrinoLab @philamillan Both can be true. That that's what's needed and that there isn't capacity.

[Sumeeta @sv1121]

@ZacharyGrinDPT @sunsopeningband Most patients probably do stand to benefit from some kind of intentional movement of their muscles and joints, & doing more challenging movements in the future if they happen to gain the ability to do so. But the researched GET protocols are not appropriate or realistic for many

[Sumeeta @sv1121]

@ZacharyGrinDPT @sunsopeningband My understanding, as a non-specialist, is that "graded exercise" is a general concept in rehabilitation and exercise science but "Graded Exercise Therapy" in the ME/CFS space is a specific protocol that is wildly unsuccessful in patients meeting a rigorous case definition

[Sumeeta @sv1121]

@Allisonisme1323 @AhmadRehanKhan @_mooncube @sulmoney The individual reviewer doesn't, I don't think, but the insurance company doesn't have much reason to keep reviewers on the payroll who approve "too much".

[Sumeeta @sv1121]

@domandkittysmum @alisonleary1 @DrNovisky @AcademicChatter If you turn the opinions into numbers (reducing the amount of information actually conveyed), that makes it Science™

[Sumeeta @sv1121]

Empathy as an evidence-based treatment for the common cold. Who knew?

[Luke Wiegand @wiegand_luke]

@sceneisnotsafe @jreaderMD @readiatrician https://t.co/FEZCMiwww8

Wish granted.

[Sumeeta @sv1121]

@exceedhergrasp1 I'd be happy to be wrong!

To account for gaps between theory and practice, I'd be curious what ED clinicians say about this. What they would do with a vignette of a severe/very severe ME patient & if that's different from what theoretically should happen, what the barriers are.

[Sumeeta @sv1121]

@exceedhergrasp1 Iirc a lot of the special edition articles were from the UK & this might work differently in the NHS

But here I'd be not at all surprised if that process leads to "you need several GI tests before enteral feeding & have to do them outpatient bc no indication for acute admission"

[Sumeeta @sv1121]

@exceedhergrasp1 & it's been a while since I've worked in acute care so workflows may have changed. But my expectation would be even with a GI consult visit in the ED, actually initiating feeding would require either admission or outpatient f/u (depending on their sense of urgency/certainty)