The Aneurysm and AVM Foundation (TAAF)

Dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm, AVM, and other types of vascular malformation of the brain.

[Spyros Karadimas MD PhD FRCSC FAANS @SpyrosKaradimas]

Foramen magnum-marginal sinus dural arteriovenous fistula presenting with brain stem edema and progressive myelopathy.
Skull base and cerebrovascular surgery-the inseparable twins (citing @jacquesmorcosmd). Far lateral approach provided the exposure needed for precise microsurgical disconnection of the fistula resulting in symptoms resolution. @MariaBederson @StanfordNsurg

[EveryLife Foundation @EveryLifeOrg]

The EveryLife Foundation for Rare Diseases was honored to be invited by the FDA to participate in a closed roundtable discussion with FDA leadership on Wednesday, June 3.

Our Chief Mission Officer, Annie Kennedy, and Board Member, James Valentine shared some of the challenges and opportunities prioritized by our community during our Community Congress partner engagements, PDUFA Ad hoc working group prioritization, and recent Scientific Workshop discussions.

Linked below is a summary of this week's conversation with the agency. We are grateful to Acting Commissioner, Kyle Diamantas, and Associate Director for Rare Disease Strategy, Amy Rick, for convening this meeting. We are optimistic about what comes next and look forward to working closely with the agency to ensure the voices of our community are heard.

Read our meeting summary here: https://t.co/iCGlDFD3VG

Participating organizations, pictured here, include: @CureSanfilippoF, @CFRI_CureCF, @cureangelman, Friedreich's Ataxia Research Alliance (FARA), @CancerResrch, @GlobalGenes, @HaystackProject, @iamalsorg, @stopbatten , @RareDiseases, @One_Rare_, @ParentProjectMD, @UncommonCures

[Peter Kan @PeterKa80460001]

The honor is mine. So special to spend time with @JanKarlBurkhar1 @visishs #JoshCatapno and #DanYoshor. Amazing Cerebrovasular program with high volume, high complexity, and all the cutting-edge trials. Congratulations to the team!

[BRAIN Conference @brainconferenc1]

Submitting an abstract for #BRAINConference is a no-brainer.

Thinking about submitting? There’s no such thing as too early. Get ahead before the end-of-summer rush and share your work with a global community of neuro professionals driving innovation across the field.

Ready to Put Your Brain to Paper? Here’s Why You Should:
✔️Present your work at a leading international meeting in interventional neuroradiology
✔️Access travel support through bursaries of up to €300 for participants from Europe and up to $450 for participants from outside Europe
✔️Get published in the S:VIN Journal
✔️Share pioneering research, ideas, and innovations with a global audience
✔️Network with neuro professionals and multidisciplinary experts across the field
✔️Showcase your work through e-poster or oral presentation opportunities, with oral presentations professionally recorded

Full submission details are available in the abstract submission guide: https://t.co/6WxCJvAM9q

#InterventionalNeuroradiology #INR #NeuroIntervention

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

If you could tell the world one thing about AVMs, what would it be? #AVMAwareness

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

Join TAAF Support Groups tomorrow, 6/4! ✨
🕕 6 PM BST | 6 PM EDT | 6 PM PDT
💻 Zoom
And don't forget our SF Bay Area Support Group at UCSF meets next week on 6/11!
Questions? 📧 [email protected]
#BrainAneurysm #AVM #Stroke #SupportGroup #UCSF

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

(7of7)

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

June is Migraine & Headache Awareness Month 💜

Migraine ≠ headache & every severe headache ≠ migraine.

🚨 A thunderclap headache is sudden, severe, &may signal a medical emergency.

Knowing facts from myths saves lives. (1of7)

#MigraineAwarenessMonth #HeadacheAwarenessMonth

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

(6of7)

[Redi Rahmani @RahmaniRedi]

Join us @IntSAH! The definitive SAH conference. Physicians, scientists, & lived experience leaders discuss current mgmt, research & advancements
@cvsection @svinsociety @SNISinfo @esmintsociety @ESNRad @StrokeAHA_ASA @BAFOUND @TAAF @thebeefoundatio

https://t.co/PBKtN5Pttt

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

@andrewthale3 @KahleKristopher @AdamKundishora Congratulations, Andy!👏👏👏

[Omer Doron @OmerDoronMDPhD]

Honored and humbled to receive the @TAAF Award. Happy to push forward developing tools to extract hemodynamic info from angiograms moving anatomy to hemodynamics, with Dr Butler. Big Ty to @UChiNeurosurg fostering innovation under @MohamadBydon enabling such endeavors.

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

@OmerDoronMDPhD @UChiNeurosurg @MohamadBydon We're thrilled to include you this cycle and bowled over by your work.

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

Your voice matters. 📷

Applications are now open for the 2026 #TAAFYouthAmbassador Program.

Ages 10–18.

📷 June 1–15
📷 Email [email protected] to request an application.
#AVMAwareness #BrainAneurysmAwareness

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

@OmerDoronMDPhD @COLH_World

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

The future of #cerebrovascular #research starts here.

We're proud to announce the recipients of the 2026 TAAF Cerebrovascular Research Grants.

Follow this thread to meet each researcher impacting the future of #brainaneurysm and #AVM care. #TAAFGrants

[The Aneurysm and AVM Foundation (TAAF) @TAAF]

@OmerDoronMDPhD @COLH_World