Tanya Louise Russell

Always stay so incredible and crazy she said 💜🦋💜

[Tanya Louise Russell @tanyard43]

🦋Exciting news 🦋
My very first online auction goes live tomorrow , take a look and maybe help support @SudepAction by bidding on one of my items
https://t.co/hLS3qgoEiA

[Johdi Russell @JohdiRussell]

Ive had the best night🎊

[SUDEP Action @SudepAction]

"It's shocking they have not had access to a Minister since 2014' #SUDEPActionDay2022
#TalkSudepNow

[Anna Firth @Anna_Firth]

Sudden Unexpected Death Epilepsy (SUDEP) is a condition which needs serious attention. @SudepAction This condition is little known but leads to the death of 21 people across the UK every week - half of which are preventable.

[Tanya Louise Russell @tanyard43]

@Anna_Firth @SudepAction Thankyou Anna for allowing us to tell our stories. My daughter @JohdiRussell died just aged 17, and is just one of many, and you were there in support of all our SUDEP Angels 💜🧡

[Tanya Louise Russell @tanyard43]

Thankyou to @BenPBradshaw for sitting with me yesterday and listening so intently to my story of losing my 17 year old daughter @JohdiRussell to SUDEP. A special Thankyou to @SudepAction for always being there to support me and allowing me to share my story 💜🧡

[Tanya Louise Russell @tanyard43]

The Purple Ball in memory of @JohdiRussell and supporting @SudepAction @EpilepsyRUK Saturday 1st October The Grand Pier Weston super mare

[Tanya Louise Russell @tanyard43]

@mwalkerdine Hi, sadly for his family, Luke’s body was found, he had been murdered by Keith Tiley. As far as we’re aware Tiley was given a new identity following a short 2 years detention for murdering a defenceless 10 year old boy. 😞

[SUDEP Action @SudepAction]

Seizures are unpredictable so knowing these basic #seizurefirstaid tips to help people with epilepsy could be vital. For more information on #epilepsy first aid visit https://t.co/PRfOyqcM75

#EpilepsyFirstAid #SUDEP #BonfireNight

[Epilepsy Research Institute @EpilepsyInst]

This month saw the return of @tanyard43’s annual Purple Ball in aid of Epilepsy Research UK and in memory of her beloved daughter, Johdi. The event was another success raising an incredible £2000 for vital research into epilepsy. Thank you all so much.

[Tanya Louise Russell @tanyard43]

#Time2Change

[SUDEP Action @SudepAction]

Today is #SUDEPActionDay2021 & we are joining with people & organisations around the world to raise awareness of #SUDEP & epilepsy risks- it's #Time2Change

We have plenty of ways you can get involved:
https://t.co/yW4jBGvPwz
Don’t forget to let us know how you'll be supporting!

[SUDEP Action @SudepAction]

Our theme for #SUDEPActionDay2021 is #Time2Change. People with epilepsy WANT to be told about #SUDEP & #Epilepsy risks.

Many bereaved families were NOT told about SUDEP & wish that this vital information had been shared with their loved one.

https://t.co/cyPVR8Vgwy

[SUDEP Action @SudepAction]

Thank you & well done to @tanyard43 who held her Purple Ball last weekend, in memory of her daughter Johdi. Tanya raised a massive £2540 for us!

Thank you so much Tanya, her family & all those who attended, for supporting #SUDEP Action at the 2021 Purple Ball (1/2)

#Epilepsy

[Epilepsy Research Institute @EpilepsyInst]

Today sees the return of @tanyard43’s annual Purple Ball in aid of Epilepsy Research UK and in memory of her beloved daughter, Johdi. We are so fortunate to be supported by this wonderful event celebrating the life of a very special person💜 Thank you.
https://t.co/5T4OkVzoUO

[Tanya Louise Russell @tanyard43]

@EpilepsyRUK Thankyou for always being there for us as a family 💜

[Tanya Louise Russell @tanyard43]

@EpilepsyRUK @SudepAction Thankyou for sharing our event, it was a great day supported by so many generous people 💜🦋💜

[Tanya Louise Russell @tanyard43]

My heart goes out to Amii’s family.
I , like many others know exactly the pain their feeling. Another unnecessary potentially preventable death, just like my daughter @JohdiRussell 💜

[SUDEP Action @SudepAction]

Our hearts go out to Amii's family. Amii’s death is one more too many. SUDEP Action have been alongside the family every step of the way

Anyone affected or who needs specialist help before, during, or after an inquest, please contact us: [email protected]

https://t.co/akVml5TkLl

[Tanya Louise Russell @tanyard43]

#WIN a @Waltonsgarden Log Cabin worth £3,649

Fingers crossed 🤞🏻
Enter the #WaltonsLogCabinComp here: https://t.co/EKJvCaFX7c