ManyFacesofMoebius

Mission Statement To create a better tomorrow for ourselves and our children through education and public awareness!

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLKGK

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLcRc

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLcRc

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLcRc

[ManyFacesofMoebius @team_moebius]

📢 NEW RESOURCE!

We've launched the MFOMS National Medical Assistance Directory—a free resource connecting families to 200 national organizations that provide help with:

💊 Prescriptions
🏥 Medical bills
✈️ Travel & lodging
🦽 Equipment
🏠 Housing
📚 Education
⚖️ Legal advocacy
...and much more.
Search by state, type of assistance, or keyword.
🔗 https://t.co/ZLYWOLU6xO
#MoebiusSyndrome #RareDisease #DisabilityResources #SpecialNeeds

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLKGK

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLKGK

[ManyFacesofMoebius @team_moebius]

#moebiussyndrome https://t.co/qNouiTLcRc

[ManyFacesofMoebius @team_moebius]

Every child deserves the opportunity to be understood.

Understanding Moebius Syndrome was created to help families and schools work together to support students living with Moebius syndrome. Learn more at:

📚 https://t.co/a2XMicMneU

[ManyFacesofMoebius @team_moebius]

Finding the right care shouldn’t depend on who you know.

We created a free Craniofacial Hospital Directory to help individuals and families find care—without barriers.

No cost. No sign-up. Just access.

🔗 https://t.co/3pH5lapzXx

#MoebiusSyndrome #RareDisease #Craniofacial

[ManyFacesofMoebius @team_moebius]

Un miembro de la comunidad comparte este video sobre el libro
Síndrome de Moebius: Historia de una condición poco frecuente 💜
Disponible en español en Kindle y en tapa blanda en Amazon.
Búscalo por el título.

#SíndromeDeMoebius #EnfermedadesRaras #LibroEnEspañol #RareDisease

[ManyFacesofMoebius @team_moebius]

Moebius Syndrome in the News
A new press release announcing Moebius Syndrome: A History of a Rare Condition is now live. https://t.co/hjshr5yQ9F Please Share! #medicalhistory #moebiussyndrome #raredisease

[ManyFacesofMoebius @team_moebius]

Now available in paperback ($8.99):
Moebius Syndrome: A History of a Rare Condition

A historical look at how physicians defined, debated, and refined understanding of Moebius syndrome over more than a century.
https://t.co/NXku6qfpHQ

[ManyFacesofMoebius @team_moebius]

Not every voice is found in spoken words. Sometimes it lives in patience. In presence. In love that doesn’t need explaining. Understanding starts when we slow down enough to see it. 📷 https://t.co/kFLoHoGtUA