Victoria Feddersen

Mum of 2. Trying to raise awareness of Phelan-McDermid syndrome. My youngest daughter is 1 of 1500 worldwide diganosed with this rare genetic condition.

[Victoria Feddersen @teamfeddo]

@LincsFM I can’t remember what I won, think it was a leisure centre pass, but I won a dance competition dancing to The Bart Man 🤣

[Victoria Feddersen @teamfeddo]

Ppppl

https://t.co/B8PRksAzW1

[Victoria Feddersen @teamfeddo]

@colleaguebox Thank so much to Colleague Box for these fab chocies!! Winner winner chocolate dinner!! Very much appreciated x

[Victoria Feddersen @teamfeddo]

@colleaguebox @Andy_JacksonLFC Awwwww that’s lovely, thank you so much. Can I email my address? Thanks again 😊

[Victoria Feddersen @teamfeddo]

@StGilesRetford ever since we’ve had a home reading book little miss has become so much more engaged with books. Thanks St Giles

[Victoria Feddersen @teamfeddo]

@StGilesRetford Emily was enjoying Sarah’s signing screen in reception this morning 😁

[Victoria Feddersen @teamfeddo]

@StGilesRetford The Friends of St Giles school would like to invite all parents, carers and staff along to a coffee morning, Friday 11th October, 9.30am in school. Friendly chat, a chance for new parents to meet others & loads of yummy cake. Hope to see you there!

[Victoria Feddersen @teamfeddo]

@StGilesRetford #LookForABook hiding our book for someone else to enjoy

[Victoria Feddersen @teamfeddo]

@StGilesRetford #LookForABook hiding our book for someone else to enjoy

[St Giles School @StGilesRetford]

Today we received a special #sensory delivery from the Friends of St Giles. We are so grateful to the incredible support they give to our school. #TeamStGiles

[Victoria Feddersen @teamfeddo]

@StGilesRetford @sinfoniavivauk Awwww!! This is awesome 😍

[Victoria Feddersen @teamfeddo]

@revkatebottley @StGilesRetford Thank you Kate for taking part in our makaton Christmas advent and your support of St Giles school. My daughter attends the school and loves it there 😁

[St Giles School @StGilesRetford]

And our final #Makaton #advent sign comes from the one and only @revkatebottley. Thank you for your support and we’ve loved listening to #GMS on @BBCRadio2 #ChristmasDay

[Mik Scarlet @MikScarlet]

Funny how society imagines Disabled people are ill because they're Disabled, without grasping that for many of us our illnesses are caused or worsened by how society disables us.
EG I've spent the last 6 days ill from an infection caused by a lack of toilet on a 4hr train journey

[Phelan-McDermid Syndrome Foundation @Phelan_McDermid]

What an exciting week for PMSF! 5 days until our FIRST ever #PMSAwarenessDay! Please join us spreading awareness for Phelan McDermid!

[MyLocal Lincolnshire @MyLocalLincs]

Coca-Cola Christmas truck ‘stuck in field’ on way to Gainsborough

https://t.co/3DTsXqceZO

[St Giles School @StGilesRetford]

Another wonderful donation from one of Beechy's fundraisers! A fab £1900 for FOSG and £665 for school!! Thank you so much!!

[Retford Times @Retford_Times]

Fantastic!

https://t.co/MZ0mYrbPNN

[Phelan Lucky @PhelanLucky2213]

Can't wait to see you on 9/23! Look out @thestarboard ...here come's #PhelanLucky!!! 🍀💚 https://t.co/CEhphSkRoJ