Hello!👶🏼 Follow my journey as my family & I help raise funds & awareness for SMA. I 💙going swimming & outdoor adventures! I was diagnosed with SMA in 2016.
#SMA is a rare disease affecting 1 in every 11,000 people born. But that doesn’t make it any less important. Help us mark #SMAAwarenessMonth by sharing with your followers. https://t.co/OQNmyy3tXc
Today is #UKSMAAwarenessDay! Spinal Muscular Atrophy is a rare, genetically inherited neuromuscular condition. Please retweet to help raise awareness of #SMA
It’s #VolunteersWeek! We’d like to say a huge thank you to all of the amazing volunteers at both the hospital and charity for all of your hard work. We think you’re all brilliant 🎉🌟☺️
Check me out!! Trying a #Wizzybug for the first time 🤗Thanks @DesignabilityUK for my first taste of independence (and to Nick & Oliver for letting me loose in it at the @SMASupportUK info, support & social event) 💙 Oscar ☺️
Today is #RareDiseaseDay2018, with events taking place all around the world to help raise awareness of rare conditions, such as #SpinalMuscularAtrophy. There are lots of ways you can get involved, including on social media: https://t.co/uwYyULwkqQ
Please RT and share. Hi everyone I missed the entry date to this years @LondonMarathon and am now looking for a charity to represent. Can anyone help with this? I have already started training and will do my very best to raise as much cash for you as possible!
Please RT and share. Hi everyone I missed the entry date to this years @LondonMarathon and am now looking for a charity to represent. Can anyone help with this? I have already started training and will do my very best to raise as much cash for you as possible!
Our virtual #ChristmasTree is now live on our website! You can pick your favourite colour bauble to hang on our SMA Support UK tree and include a personalised, festive message: https://t.co/Y9L0e2ta4W
👀Spotted! Special GOSH Charity-branded #FairyNonBio packs in supermarkets across the country! Pick up a branded pack and make a difference to the hundreds of children who arrive at GOSH every day: https://t.co/TVFiuOnzc8