TechVsALS

Founded by tech industry veteran and pALS @sarbacker, the TechVsALS team fundraises to sponsor #ALS #EAP sites in partnership with MGH #HealyPlatformTrial

[TechVsALS @TechVsALS]

@bsw5020 Please follow! More good news coming soon!

[TechVsALS @TechVsALS]

@MGHNeurology Congrats @MeritCudkowicz you are the best! 👏 🙌

[TechVsALS @TechVsALS]

@limpbroozkit @NEALSConsortium Your dad was definitely cool and asked fun questions but for the record I liked you better haha

[MGH Neurology @MGHNeurology]

Our specialists will be presenting their work over the next couple of days at #NEALS2022. Some of the topics include the #EAP program, Biomarkers in ALS, Data sharing, the PRO-ACT platform, and more. @NEALSConsortium @PaganoniMDPhD @MeritCudkowicz #HealeyHope

[MGH Neurology @MGHNeurology]

Thanks to the @TechVsALS campaign for making the addition of the Jefferson Weinberg Center for ALS to the EAP program possible. #HealeyHope #EAP4U
Read more here: https://t.co/0fBIeAkLn4

[TechVsALS @TechVsALS]

@MGHNeurology It’s a tremendous honor to get to partner with @MeritCudkowicz and the amazing team at the Sean M. Healey Center for #ALS! We’re just getting started! #HealeyHope #EAP4U

[Brian Wallach @bsw5020]

Tonight, thanks to John Costello and his amazing team, I played my synthetic voice for my family for the first time.

My daughters asked it was. My wife replied, that was the way daddy’s voice used to sound. I just listened and held back tears.

Good night moon.

[Sabrina Paganoni, MD, PhD @PaganoniMDPhD]

Really excited to be working with Jefferson on EAPs for #ALS #MND - growing opportunities for EAPs at sites of the @NEALSConsortium - huge thanks to @TechVsALS for helping expand #EAP4U

[Sabrina Paganoni, MD, PhD @PaganoniMDPhD]

Progress for those living with #ALS has been stalled for so long, yet there are so many opportunities to change this narrative. @MiPhilanthropy has published a new guide outlining the ALS landscape and ways to move the field forward: https://t.co/vXVxZdaKnS
@MilkenInstitute

[TechVsALS @TechVsALS]

@ScottFightsALS Hey @ScottFightsALS, @TechVsALS is up and running and fundraising for greatly increased #ExpandedAccess. Check us out. https://t.co/1mjWOmNL2C

[TechVsALS @TechVsALS]

@aVoice4ALS @TechVsALS is working towards more #ExpandedAccess. Check it out!

[TechVsALS @TechVsALS]

We are thrilled to announce the ribbon cutting on our first @TechVsALS sponsored #ALS #EAP site at Jefferson Weinberg ALS Center in Philly via a generous gift by Kulicke & Soffa.
https://t.co/BQmm79RL2x
https://t.co/M5IMclemsg
#TechVsALS #DrugsInBodies #HealeyPlatformTrial

[Kelsie Snow @kelsieswrites]

A little story 🧵. Back in June we did an MLB press conference for Lou Gehrig Day. Also on the call was @johndhopkins, founding member of @zacbrownband and new member of the shittiest club around — the ALS club. Hop said something on that call I’ll never forget … 1/4

[TechVsALS @TechVsALS]

Hoping for a #LouGehrigDay photo op with @MikeTrout and/or @bryceharper3 !

[TechVsALS @TechVsALS]

T-shirts hot off the press for #LouGehrigDay. I got invited down to the field for batting practice at tonight's @Phillies vs. @Angels. Looking to raise awareness for our #TechVsALS fundraising campaign for #HealeyPlatformTrial #EAP.

@bsw5020 @SteveGleason @MeritCudkowicz

[TechVsALS @TechVsALS]

We launched our official logo! Thank you Laura Shames for the awesome design!
#TechVsALS @sarbacker

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

@AP_FDAwriter @AmylyxPharma @US_FDA #ALS is like the #Titanic.

W/o lifeboats, there's a 100% chance of dying.
Imagine if the Titanic crew failed to offer lifeboats just bc they didnt know if they could save everyone.

@AmylyxPharma 's drug is a lifeboat.

#SomeIsEnough
#DyingWaiting

Photo credit: @mlukovichajc