Terri Klein

President and CEO of the National MPS Society. Working to provide hope and support to families for treatment and cures of MPS and ML.

[Terri Klein @terrilklein]

Thank you @RepMeijer for sharing Rare Disease Day with our Families. Speaking to you was inspiring! Michigan is lucky to have an engaged Rep! @MPSSociety #savelives #RareDiseaseDay #advocate

[Terri Klein @terrilklein]

It is wonderful to advocate with fellow parents for our children! It is Rare Disease Day 2022.

[National MPS Society @MPSSociety]

Thank you @RepJackBergman for listening to our constituents on Rare Disease Day. It meant a great deal to us all. You really understand. #cures #RareDiseaseDay @terrilklein #michiganisamazing

[Terri Klein @terrilklein]

@BigweatherABC11 Snowmen and hit cocoas!!!

[Terri Klein @terrilklein]

@melissajhogan You should have an x-ray!

[Terri Klein @terrilklein]

Congratulations @SusanRKahn one of the most wonderful patient advocates! Well-deserved.

[WORLDSymposia @WORLDSymposia]

Sue Kahn, Executive Director of the National Tay-Sachs & Allied Diseases Association (NTSAD) to receive 2022 Patient Advocate Leader (PAL) Award at WORLDSymposium 2022 #WORLDSymposia #RareDiseases #careaboutrare https://t.co/cqsUOYMefL

[Terri Klein @terrilklein]

@melissajhogan Yes...you...can

[CNN Breaking News @cnnbrk]

A 38-year-old Florida man who was the first US Capitol rioter convicted of a felony has been sentenced to eight months in prison
https://t.co/gtbO4oUPiW

[Terri Klein @terrilklein]

@CureSanfilippoF Yes they did!!! Go Conner.

[Terri Klein @terrilklein]

@Gepnak @Writer_DG @SamHeughan @grahammctavish There are faces everywhere, if you really look...

[Terri Klein @terrilklein]

Join us in policy action!!

[National MPS Society @MPSSociety]

Support the bipartisan STAT Act (Speeding Therapy Access Today) of 2021, H.B. 1730 / S. 670. This will improve access to safe and effective treatments ASAP, crucial for MPS/ML. Read more and contact legislators with an automated form: https://t.co/OZjZLz0W3A.

[Terri Klein @terrilklein]

@avrobio @MPSSociety Thank you for all you do!

[Terri Klein @terrilklein]

@SamHeughan America is far from healing. Until we learn to love one another for their beliefs, and remember how this countey was founded, through freedom of speech and religion. Through our Constitution and guided by the three fiduciary bodies of governed jurisdiction, we cannot heal....

[Terri Klein @terrilklein]

@OutlandishScot Cat might have figured part of it out... But those flowers are on a green pole stand, and from the angle the photo is taken, it appears they are on top, but alas they are in front and to the left of the man!

[Terri Klein @terrilklein]

@Srotberg15 We got you Seth! Sending positive thoughts

[EveryLife Foundation @EveryLifeOrg]

Discussion #nbsbootcamp "A Look Inside the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)".

[Terri Klein @terrilklein]

@EveryLifeOrg Honored to join these esteemed physicians and discuss the RUSP nomination for newborn screening. @MPSSociety

[Terri Klein @terrilklein]

@grahammctavish @SamHeughan @HodderBooks @Mobius_Books Ordered mine! Cannot wait to hear stories of the homeland.

[National MPS Society @MPSSociety]

September is Newborn Screening Month! Don't miss @MPSSociety President and CEO Terri Klein at the @EveryLifeOrg Newborn Screening Bootcamp starting September 30th. It's a five-part series to help educate and empower NBS advocates. Register today: https://t.co/0iwkcfSfO9

[Terri Klein @terrilklein]

@PattiDickson Ugh.

[Terri Klein @terrilklein]

@Writer_DG I too am in awe. I cherish that the character of Jamie was educated, and spoke other languages, including a wee bit of sign language. Claire, was in awe too during the introduction of Mr. Willoughby )my maiden name). Jaime needs to go toe to toe with Claire, and this balanced!