As a first-wave, long-hauler, I used my personal experience with chronic illness to write a yearly planner designed for chronic illness that is available on Amazon! Check it out!
#LongCovid#LongCovidKids#chronicillness#yearlyplanner#SmallBusiness
https://t.co/XsDMspglrv
@royalhansen Iโm currently receiving the IV immunoglobulin through the RECOVER clinical trial for Long COVID. Trying to help others like us in the best way I can. Sorry your son is having trouble tolerating it.
So many nights Iโve gone to bed thinking excitedly โoh, tomorrow Iโll do xyzโโฆand then woken up with nowhere near enough energy. I was a perfectionist, a planner, an organizer, an overachieverโฆIโm still that person but trapped inside a sick body.
Today is my covidversary. 4 years ago today, I started experiencing symptoms, which led to me being in critical condition in ICU a week later, and a never-ending chronic illness still going to this day.
#LongCovid
Getting close to my covidversary, the day that changed my life forever. After my awful initial infection, I never got better and have been sick with #LongCovid ever since. I was a healthy 26 year-old. Never saw it coming.
Do you read more than 50 books in a year and want to keep track of all those reads? โFully Booked: Extended Editionโ reading journal is for you, and your purchase benefits a small, disability-owned business! Check it out on Amazon!
#disabilitytwitter#chronicillness
is wish there was a place we could go that wasn't a hospital or psych ward that people with LC and MECFS could stay as long as they needed to try and heal. almost like a retreat type facility but with medical and quite individual rooms. pain management and access to IVs for sleep
"So what do you do for a living?"
as someone who just began receiving disability benefits, is no longer working at all, & doesn't wish to disclose any of this to anyone, how should I answer this question? ๐