i am shocked how little has changed in ME world. Until the #ME community defines exactly what #ME is, I see little hope of things ever changing or a way out, especially for the most ill.
We are pleased to share a new song for Christmas.This year has been particularly hard for everyone with the Pandemic. So many losses and struggles can make it hard to feel the joy and blessings of Christmas easily or at all. https://t.co/M5olL3Ckh5 via @YouTube
SEVERE ME - A HUMAN RIGHTS ISSUE
There is a new Blog called"Just Breathe-Life With Myalgic Encephalomyelitis", its first post is an extremely powerful account of the "incarceration" of people with ME, which I have linked to, on Stonebird.... https://t.co/N8EY0foSp4
Many thanks to Macauley for coming out this morning and doing a superb job of fixing our sink and going the extra mile to fix a difficult broken bath tap. The relief of finding someone so helpful, calm,... https://t.co/GSCBTqy1hk
Researchers from Newcastle and Oxford determine commercial mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019 https://t.co/pxWIiKIhoE