searching for answers

Lover of earth & sun ☀️🌍••• Healing from severe LC, dysautonomia, pots, mcas since March 2020 #firstwave Fighting for this one precious life #bedbound.

[searching for answers @thevoidinspace]

@SheilaBeilaGuy Is the low dose glp1 helping keep your mcas under control?

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@linds_longcovid I guess tonmya is sublingual, low-dose and bypasses the liver, so not as many side effects? I did end up trying baclofen but it lowers my BP even more. 90% of the meds i try do nothing or make me feel worse, I get it 😬

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@RyanDBledsoe I thought your family was maga?

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@BetweenThieves7 @NeuroSjogrens What peptides are helping pem? Ive trialed bpc, kpv, larazatide, ss31 with no noticeable benefit

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@Bettje37 @useless_priest It's fine to call them out for not masking and their low-hanging fruit trials, de@th threats are not ok tho. I want a solution now too, ive been bedbound/severe for 6.5yrs! But I have a background in research and I know how slow these clinicsl trials move.

[searching for answers @thevoidinspace]

@useless_priest I didn't even know this was happening until I logged into X. I dont know how patients even have the energy for this. The anger is misplaced. Be mad at the world govts, public health and the elites for their poor response & for GOF research.

[searching for answers @thevoidinspace]

@gymrat_bookworm Do you have a csf leak as well?

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@dieworkwear Washing is grear. Just dont wear fragrances or colognes.

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@chydorina This was myhills flax bread I reacted too. I already know I cant tolerate anything in your recipe 😜😭

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@chydorina My partner made this for me a couple times back in 2023, loved it with ghee. Tried it again recently and had a severe allergic rxn to flax. Dang mcas! So bummed.

[searching for answers @thevoidinspace]

@Scottobix Me too brother. I became gravely ill in 2020. Praying all day everyday for an answer, for help, for peace, for healing. Im leaning more agnostic now.

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@Dfrizz007 Well it is impacting many military personnel, so maybe they have a vested interest? But I dont trust them either.

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Could explain why when I am forced to sit up for more than a few minutes I feel no blood flow to my brain & then a snapping/hot liquid sensation of fluid running down my neck. And brain feels like it's sloshing around. Worsening my condition for weeks-months

[searching for answers @thevoidinspace]

Does anyone else have internal jugular vein compression? I was referred to a specialist to look into this further and sadlythey dont take my insurance.

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I also have an official CCI diagnosis. Overlap btwn the conditions is common bc weak neck ligaments and instability can compress the vein further.

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@SalvMattera If I had been born this disabled and in constant agony like I am now, I would not have wanted to be born at all. At least I have 30+ years of good healthy times to reflect on.

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@amyrochlin @CortJohnson @CellCellPress @VirusesImmunity @PutrinoLab A lot if us have g-achr autoantibodies after covid (AAG). Ive been testing positive since 2020 infection. It almost always presents after viral infection and no one knows anything about it, even mayo. One researcher in all of the US

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@DrRogerHugh @RubinReport @BernieSanders @SenWarren I thought the left canceled him when it was revealed he had a nazi tattoo