Edith Solenne Monk

Wheelchair user due to MS - Blogger - Think in decimals - UK

[Edith Solenne Monk @thinkindecimals]

Another budget… another year kicking the rusty weather beaten social care can down the road… 🙄

[Edith Solenne Monk @thinkindecimals]

@shandymitford Yes I got on anti virals which are working quickly luckily but I’m just so fed up of being unwell. And agreed I never appreciated how painful shingles are!

[Edith Solenne Monk @thinkindecimals]

I now have shingles…, excruciating pain, desperately trying to avoid it leading to any other complications.
Crossing everything to have 6 ‘healthy’ months with just MS… 😔

[Edith Solenne Monk @thinkindecimals]

Returning to work after 8 months of maternity leave… can I find a wheelchair accessible taxi again?! Only if I go in after school times and arrive at work at 10 🤦🏻‍♀️😫 being disabled is fucking tedious.

[Edith Solenne Monk @thinkindecimals]

@rolandmcs 🙈🙈🙈

[Edith Solenne Monk @thinkindecimals]

@vsmacdonald This is quite usual unfortunately- care agencies won’t pay for this

[Edith Solenne Monk @thinkindecimals]

@touretteshero Abso fucking lutely. Carers get sent to me and I see the light in their eyes as they want to chat and have a cup of tea while i tell them all about my illness. It comes as a shock to them that I don’t like small talk and want them to practically help me.

[Edith Solenne Monk @thinkindecimals]

@MSNysara Coffee 🤷🏻‍♀️

[Edith Solenne Monk @thinkindecimals]

@Drew_Hyndman @MarkWebb_ For me, it allowed me to cut to part time work. My fatigue and pain meant I couldn’t continue full time work. Without it, I would have to have stopped working altogether and lived entirely on universal credit.

[Edith Solenne Monk @thinkindecimals]

@UberEats this discount isn’t being applied at Waitrose though I seem to meet the T&Cs 🤷🏻‍♀️l

[Edith Solenne Monk @thinkindecimals]

@dirtylikecandy For sure he’s grieving. It’s just sad my reaction is ‘I wish I was diagnosed at 71’ 😔

[Edith Solenne Monk @thinkindecimals]

Maybe it’s the contrast of disease at 71 against a successful career and life prior… but, having been diagnosed w MS at 16 I genuinely struggle to sympathise. 🤷🏻‍♀️illness makes you bitter like that

[Rachel Horne @RachelHorne19]

Hmmm
Jeremy Paxman says Parkinson's "makes you wish you hadn't been born."
Hate comparing neuro-diseases, but the TV presenter was diagnosed at 71. (Average onset age 60).
MS - average diagnosis 30. Pivotal time re career, relationships & having children.
https://t.co/YDv02t7Q5C

[Edith Solenne Monk @thinkindecimals]

‘staff were not trained to push different types of wheelchairs’… This is the type of bullshit I hate about the UK ⁦@EurostarUK⁩ WHAT TRAINING DO YOU NEED TO PUSH A WHEELCHAIR?! How about fricking shopping trolleys?? They’re not army tanks 🙄 https://t.co/qmR6htFIFI

[Edith Solenne Monk @thinkindecimals]

@BusyBeesLainey Ah ok interesting thank you

[Edith Solenne Monk @thinkindecimals]

MSers: How much vitamin D to give to my baby to prevent MS? They’re getting the RDA through formula milk but should we do more? #multiplesclerosis #vitD

[Edith Solenne Monk @thinkindecimals]

@g0ldf1nch Yes true but the uk isn’t sun rich 🙈 enough though I suppose

[Edith Solenne Monk @thinkindecimals]

@BusyBeesLainey Why did you only start at 2.5 years?

[Edith Solenne Monk @thinkindecimals]

@g0ldf1nch As adults we’re advised to take more, so it seems like a no brainer 🤷🏻‍♀️

[Edith Solenne Monk @thinkindecimals]

I am in total amazement that my disfunctional body grew a baby, it truly feels like the womb and nervous system operate entirely separately. 💜
https://t.co/bJeVYXzWTq

[Edith Solenne Monk @thinkindecimals]

@AbiBuddComms I me that’s loads! Xx