“Must be nice to take a nap every day,” they said, completely missing the point. My nap is essential in managing my pain and #fatigue. If I skip it, I face consequences." In this essay for @CreakyJoints i look at self-care vs #RheumatoidArthritis\ care.
https://t.co/pmX6uYNVbi
Absolutely obliterated. Who knew putting a house up for sale could yank so many spoons from me. I barely made it to the couch after my Humira injection/shower this evening. Everything just hurts and I'm 24/7 fogged out at this point. #chronicillness#autoimmune#outoforder
@allylovespono I've been in the ICU multiple times for status epilepticus and having noise sensitivities for my seizures, it was almost impossible to let my brain rest and actually recover enough to be released. After they woke me up after intubation, I'd continue to seize from the stress. 😖🤮
@derekischmitz I've only used autoinjectors and never felt pain! Ahh! But I do understand why people use syringes for the control. I personally can't look at them entering my own skin
@coffeespoonie Yes. My youngest had Milk, soy, all nut allergies as a baby and there wasn't even a prescription based formula they could have. I had to readjust my diet and I fed them for over 18 months
@derekischmitz I keep forgetting American insurance companies have more knowledge than Rheumatologists about your health 😒 I hope they approve it and the Enbrel helps 🤞🏻🤞🏻