Through the Unexpected

Improving the experience of prenatal diagnosis. This Twitter account is aimed at clinicians, please see our Facebook/ Instagram for a parent focus.

[Through the Unexpected @throughtheunex1]

Please complete this voluntary survey to inform professional training about the psychosocial aspects of prenatal diagnosis - participant information and consent are available by clicking the link.

https://t.co/I1F6ycfZlZ

[Through the Unexpected @throughtheunex1]

"A very strong theme was the lack of referral to appropriate psychosocial supports."

Australian qual. study with mothers who received a prenatal diagnosis of a fetal anomaly, includes the SARF model to guide holistic care.

https://t.co/OwaJ0qqLZ4
#OpenAccess #PrenatalDiagnosis

[Through the Unexpected @throughtheunex1]

"Prenatal diagnosis of a fetal anomaly has implications for parental traumatic stress 10–12 years after the birth of the child". However, good news: resilience & relationship satisfaction equal to non-affected parents in this sample of 93🤱 & 80👨‍🍼.

https://t.co/5cM1a7Fgl8

[Through the Unexpected @throughtheunex1]

We know @COPE advocated hard for the inclusion of prenatal diagnosis in the perinatal mental health g/line update. We are grateful for their ongoing support. Sadly, the funding wasn't secured.

It's our turn to help them help us. Come chat:
Mon 5 Dec https://t.co/VxVKTcKlAu #hope

[Through the Unexpected @throughtheunex1]

Great to see the draft update of the guideline. Not great to see that prenatal diagnosis couldn't be included.

Please join our campaign to ensure that the psychosocial needs of parents who receive a prenatal diagnosis are #NoLongerHidden

https://t.co/VxVKTcKlAu

[Through the Unexpected @throughtheunex1]

Today is #GeneticCounselorAwarenessDay

GCs provide essential support to hopeful, expectant, grieving and new parents who have received a prenatal diagnosis and are trying to understand their results and options ahead.

Thank you Genetic Counsellors. #GCAD2022

[Australasian Society of Genetic Counsellors (ASGC) @GCAustralasia]

How are you celebrating #GeneticCounsellorAwarenessDay today?
Share your photos so we can see all those lovely coloured T-shirts on their annual outing. #IAmAGeneticCounselor #ANZGeneticCounsellors #GCAwarenessDay #GCAD2022

[Through the Unexpected @throughtheunex1]

We are delighted to be involved in #PMHWEEK2022 & to have attended the launch today. It was great to connect with many & to highlight the overlooked needs of parents who receive a prenatal diagnosis.

Watch this space, there are great things to come.

[Through the Unexpected @throughtheunex1]

Our final @MHPNOnline Prenatal Diagnosis & Mental Health Network meeting for 2022!

Beyond the prenatal diagnosis of congenital health disease #CHD

We hear from two experts in supporting families, one with the added insights from lived experience.

https://t.co/GFP1ITMQmf

[Through the Unexpected @throughtheunex1]

"Many parents experience long-lasting distress and may be in need of additional psychological support during pregnancy and in the postnatal period."

https://t.co/Re9ZZ16byz

#PrenatalDiagnosis #MFM @Perinatal #PMHW

[Through the Unexpected @throughtheunex1]

Congratulations to all involved. Such important work.

Thank you for the commitment to community consultation. We were delighted to see many of our recommendations actioned, to ensure that the prenatal diagnosis of a fetal anomaly was not overlooked.

https://t.co/iB4Mf5EPD0

[ACSQHC @ACSQHC]

Our Stillbirth #CCS launch is underway at the @CREStillbirth National Stillbirth Forum in #Brisbane. #stillbirthforum22

Host @teegstar welcomes expert panellists @LizMarles @AdrienneOz @EllwoodGriffith @GUDeanofMed @DeannaStuartBu3 @CarolineHomer #StillbirthCCS #CCS

[RANZCR @RANZCRcollege]

Patient-centred communication in obstetric ultrasound is important. Ms Ali Deslandes goes through some of the goals for Clinical Radiologists. #RANZCR2022 #Womensimaging

[Through the Unexpected @throughtheunex1]

We welcome the inclusion of the element of uncertainty within the tool. Often info focuses on screen accuracy & skips the uncertainty that remains when receiving a high chance or a later diagnostic test result- when parents are grappling to find out what this means for their baby

[Murdoch Children's Research Institute (MCRI) @MCRI_for_kids]

A new online tool, created by #MCRI and @JCU, has been launched to help support expectant parents in their choices around #prenatal testing for #chromosome conditions such as #DownSyndrome in their unborn #baby.
Read more: https://t.co/mOuJW5V2qV

[Through the Unexpected @throughtheunex1]

@LisaHui4 @ISPDHQ @HGSAAustralasia @ranzcog @GCAustralasia Congratulations to all involved. We specifically value the inclusion of the element of uncertainty. Many brochures focus on screen accuracy but don't surface the inherent uncertainty within grappling with what a result means for a baby and family.

[Through the Unexpected @throughtheunex1]

Today we celebrate sonographers!

Thank you for your person-centredness

Thank you for your sensitivity when sharing unexpected news

Thank you for understanding when parents return, they often fought significant anxiety to be there again with you

#AustralasianSonographersDay

[Through the Unexpected @throughtheunex1]

What do #mothers #hope for in their #birthplan after receiving a prenatal diagnosis of a fetal anomaly?

"Hopes as women who are expecting childbirth; Hopes as mothers of a baby; Hopes of being involved in the family needs"

https://t.co/rzeyw2NWwY

#birth #pregnancy #mfm

[Through the Unexpected @throughtheunex1]

Obstetric #ultrasound can reduce anxiety when findings are typical.

However, "women with indeterminate findings had pre-and-post-ultrasound anxiety comparable to that of women with major abnormalities despite vastly different prognoses".

https://t.co/ZRllTVHnZg
#MFM #support

[Through the Unexpected @throughtheunex1]

Parents who receive a prenatal fetal diagnosis of #CHD:
- low sense of coherence which⬇️further at follow-up
- ⬇️life satisfaction with life compared to parents with a postnatal Dx
- ⬆️ anxiety & depression than parents with no fetal/neonatal diagnosis

https://t.co/bgTmRMN2QE

[Through the Unexpected @throughtheunex1]

"Even though increasing attention is being paid to the psychosocial aspects of TOP, the results from this study demonstrate a substantial existing need for psychosocial across all TOP phases."

https://t.co/75I4Cq2oms

#PregnancyandInfantLossAwarenessmonth #TFMR #OpenAccess

[Through the Unexpected @throughtheunex1]

Did you know that the @RedNoseAus Hospital to Home program operates Australia wide?

Bereaved parents, such as those who experience #TFMR or stillbirth after a prenatal diagnosis can self refer or providers can refer.

https://t.co/Ff48ZPO6wN

#Pregnancyandinfantloss #PAIL2022

[Through the Unexpected @throughtheunex1]

"This confirms that a systematic, deliberate effort in reflective thinking and seeking meaning is beneficial to women post-TFA."

#PregnancyandInfantLossAwarenessMonth

https://t.co/J0bAqqk4or

#PostTraumaticGrowth #Psychosocial #Support #TFMR #Meaning

[Through the Unexpected @throughtheunex1]

It's on tonight!

This #Pregnancy & Infant Loss Awareness Month, join us for an In Focus session about termination for medical reasons.

Hear from a #bereaved mother & a #bereavement practitioner about the need for and provision or support.

https://t.co/XxgS5FjjpK
#TFMR