timbenson

Short generic patient staff and carer-reported PROMs and PREMs. CEO R-Outcomes Ltd. Interoperability (HL7, SNOMED CT, FHIR). Patient leader. Q member.

[timbenson @timbenson]

Patient-reported outcomes and experience. Book has arrived. #proms #prems https://t.co/GjhAMfypXV

[timbenson @timbenson]

Why do penguins struggle with modernist architecture? https://t.co/31dOcUckAw

[timbenson @timbenson]

@MustBeMistry I agree 100%. The core problem is perhaps an obsession with innovation and research, not implementation and spread. It would be interested to know what the relative sums are for: (1) innovation, (2) implementation of UK-developed ideas.

[timbenson @timbenson]

@Rainmaker1973 @RoryStewartUK I would prefer to use bias (=low accuracy) and noise (=low precision)

[timbenson @timbenson]

@MustBeMistry This is why generic methods are so useful

[timbenson @timbenson]

@MustBeMistry Yes, the patient’s voice is missing. People seek healthcare to help them and their families, but PROMs are rare in routine care. Why?

[timbenson @timbenson]

I just signed the petition calling on Paula Vennells, the former CEO of the Post Office to be stripped of her CBE. Will you sign too? #MrBatesVSThePostOffice https://t.co/baD6u5bI4E via @38degrees

[timbenson @timbenson]

Why it is hard to use PROMs and PREMs in routine health and care – new paper #PROMs #PREMs #BMLOQ https://t.co/y21qNl4GGn

[timbenson @timbenson]

@alf_collins Patients are complex. We cannot sum up what matters to every patient very easily, but we must ask patients. This is why patient-centred care is vital, and must be supported by appropriate patient-reported questionnaires.

[timbenson @timbenson]

@MustBeMistry The aim of the NHS is to help patients and their families.

[timbenson @timbenson]

You just need to bring everyone with you, and I mean everyone. It helps a lot to use systems that are fit for purpose. Trish Greenhalgh’s NASSS framework lists lots of ways that things go wrong, but each is fixable.

[Pritesh Mistry @MustBeMistry]

Digital transformation in NHS & social care is not rocket science!

It’s harder - it’s culture change & messy relational changes on how people work and behaviour together.

[timbenson @timbenson]

Principles of Health Interoperability FHIR HL7 and SNOMED CT – Summer Sale – 50% off.

https://t.co/qmUI5BQiSf

[timbenson @timbenson]

@MustBeMistry To computerise social care you must use clear terms. Social workers choose words carefully, but with local dialects. We need a rigorous coding scheme. SNOMED CT is not fit for purpose, nor is anything else. Without this, we will only have free text. This is hardly progress.

[timbenson @timbenson]

@MatPearce One solvable problem is that we do not measure deprivation in clinical settings and aggregate the results. SDOH are usually measured only at community, not individual, level.

[timbenson @timbenson]

@RslewisSally We must focus on value given, not volume processed. This means measuring outcomes and experience using common measures. It also means measuring results (outputs) not just payment (inputs).

[Gary McAllister @GaryMcAllister]

Outcomes data so important to support any private treatment preference... you don't always get what you pay for.

[timbenson @timbenson]

@jjameswalk @INTEROPenAPI @NHSEngland Amazon shows a new cover and increased price but look inside still says 2005.

[timbenson @timbenson]

@jjameswalk @INTEROPenAPI @NHSEngland I hope someone will soon write a book about the whole debacle including what came before and after.

[timbenson @timbenson]

@acpatient 100% right!

[timbenson @timbenson]

@WEAHSN why do we not record health inequalities (eg SDOH) at the individual level but rely on locality measures? #Integratinginnovation

[timbenson @timbenson]

@KevinGMayfield The artificial split between clinical and non-clinical is based solely on original qualifications. I have 2 engineering degrees, but I would not trust me to design a jet engine. It is stupid.