Tim Tobin

Lawyer living with ALS. Husband. Father. Blessed.

[Governor Mike Braun @GovBraun]

The #PromisingPathwayAct is proudly bipartisan, and gaining steam every day.

This week we're proud to add @SenatorRicketts, @SenLummis, @SteveDaines, and @SenCapito to our bill to help Americans struggling with life-threatening diseases get access to promising treatments.

[Governor Mike Braun @GovBraun]

There’s been a lot of positive momentum for the Promising Pathway Act following our hearing last week. Thank you to our new cosponsors @SenatorShaheen @SenAlexPadilla @SenVancePress @SenEricSchmitt @LindseyGrahamSC for your support! It’s time we pass PPA for the patient community.

[Tim Tobin @tptobin]

Grateful to have been part of #promisingpathwayact press conference before #PPA hearing last week. Thanks to all involved including @iamalsorg PPA team, @bsw5020, @sabrevaya, @drjpo, Fighting for future & PPA advocates we have lost: @CoreyPolen, @sandymorris333 and @becky_mourey

[Tim Tobin @tptobin]

@Troy_W_Fields @drjpo @bsw5020 Thank you Troy! I share in your thanks to all that made it happen as well as all the PPA subgroup member, Peggy and Jim, and Brian and Sandra. And thank you for your leadership.

[Tim Tobin @tptobin]

@alsadvocacy And Becky was a huge proponent of, and advocate for, the #PromisingPathwayAct Senator @ewarren

[I AM ALS @iamalsorg]

In DC? If so, join ALS advocates on 10/26 for a press conference and Senate Aging Committee meeting on Promising Pathway Act: https://t.co/KSDX0xkUrE

[Troy Fields @Troy_W_Fields]

Let's have every Senate Aging Committee member at the hearing on 10/26 and let's pack the hearing room with people seeking action.

[I AM ALS @iamalsorg]

Tell Congress about the ALS community's need for faster access to promising drugs before their upcoming Senate Aging Committee on the Promising Pathway Act: 
https://t.co/IGMyH08qWG

[Tim Tobin @tptobin]

I am going. I hope to see you there!

[I AM ALS @iamalsorg]

Come on out, Alexandria!

[Tim Tobin @tptobin]

@BoulderMike29 @Jeanc9orf72 @alsadvocacy PPA about future promising drugs. Shorten time to access while people die. Important to note that under PPA FDA can revoke provisional approval for lack of efficacy or safety. Data collection on all users (more than trial).

[Tim Tobin @tptobin]

Promising Pathway Act https://t.co/kGEJAkachr

[Tim Tobin @tptobin]

Common sense legislation!

[Michael Lecker @michaeliamals]

New action! https://t.co/tdWvRNsLMr

[Tim Tobin @tptobin]

Please like Brooke's tweet!

[Brooke Eby @limpbroozkit]

@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.

[Tim Tobin @tptobin]

@limpbroozkit @MrBeast Please like Brooke's tweet.

[Tim Tobin @tptobin]

Thank you @chairmang @RepMikeQuigley @RepWesterman @RepSwalwell for introducing the Promising Pathway Act for much needed new #FDA conditional approval pathway for terminal diseases with unmet need. Excited to now have bipartisan bills in House and Senate (S. 1906). #EndALS

[Tim Tobin @tptobin]

@MinoSean @alsadvocacy I respect Shah and his passion, and appreciate where he is coming from on this, but I agree with Evan.

[Jim Plews-Ogan @drjpo]

This is why new PPA legislation is necessary. If the drug doesn’t work, take it off the market. Give the FDA some teeth. .#ALS https://t.co/8lXLVxPJsz

[Tim Tobin @tptobin]

@bsw5020 Coming Into the Country by John McPhee (about Alaska in the 1970s)

[Tim Tobin @tptobin]

@anneek10s Sounds logical to me. Happy to see I'm not the only one over-analyzing the questions.