The #PromisingPathwayAct is proudly bipartisan, and gaining steam every day.
This week we're proud to add @SenatorRicketts, @SenLummis, @SteveDaines, and @SenCapito to our bill to help Americans struggling with life-threatening diseases get access to promising treatments.
@Troy_W_Fields@drjpo@bsw5020 Thank you Troy! I share in your thanks to all that made it happen as well as all the PPA subgroup member, Peggy and Jim, and Brian and Sandra. And thank you for your leadership.
Tell Congress about the ALS community's need for faster access to promising drugs before their upcoming Senate Aging Committee on the Promising Pathway Act:
https://t.co/IGMyH08qWG
@BoulderMike29 @Jeanc9orf72@alsadvocacy PPA about future promising drugs. Shorten time to access while people die. Important to note that under PPA FDA can revoke provisional approval for lack of efficacy or safety. Data collection on all users (more than trial).
@MrBeast@MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.
Thank you @chairmang@RepMikeQuigley@RepWesterman@RepSwalwell for introducing the Promising Pathway Act for much needed new #FDA conditional approval pathway for terminal diseases with unmet need. Excited to now have bipartisan bills in House and Senate (S. 1906). #EndALS