Trikafta will be funded in Australia!! A big thank you to the Government, @GregHuntMP and @VertexPharma, who together finalised the listing in just two months! #LifeChanging#WeGotAYesToTrikafta!! https://t.co/SjYhajzHsx
What a triumph for the CF Community! Together we have gathered 58,274 signatures for our Trikafta petition, which will be presented to the House of Representatives! Every single one of those signatures is a step towards securing rapid access to Trikafta for Australians with CF🤩
Our Parliamentary petition for Trikafta is nearing 50,000 signatures! But the petition closes TODAY so that it can go before the House. Please sign and share now while you still can.
https://t.co/DqmuLYtPFV
Last year, thousands of Aussies living with cystic fibrosis were thrown a lifeline in the form of a new miracle drug. But the cost is prohibitive, and for many, time is running out. We speak to @nckcmmns who is heading up a petition to speed up the approvals process.#TheProjectTV
Everyone knows its #TimeForTrikafta, but now our politicians need to step up to the plate. Help our Parliamentary Petition get to 40K signatures and join the fight for Trikafta!
https://t.co/DqmuLYtPFV
Meg Draffin lives with CF and wants Australia to know about Trikafta. Catch her story on The Jim and Nath Show via the link below. Our thanks to everyone who speaks up about this important issue or amplifies CF voices.
https://t.co/fdHfIJe1TF
It is amazing how many people have responded to our Parliamentary Petition. You are hoping to show Australia that Trikafta is an urgent priority. If you know anyone who would like to add their name to this petition, do not hesitate to share it!
https://t.co/DqmuLYtPFV
Share this video with anyone who wants to better understand why delays on federal funding for Trikafta have been devastating to this community:
https://t.co/hXg6HBwFwd
This is Cystic Fibrosis
We need Trikafta on the PBS ASAP
We can’t have this government dragging its heels any longer!
Please help by signing this petition 🙌
https://t.co/MbCRa3f8GU
👇Jessica is remarkable. The drug that keeps her breathing and alive costs $21,000 a month!!!! Her parents have re-mortgaged the family home. Help them fight if you can.
@CFAustralia https://t.co/IQPqd8Hz3R
$21k a month to pay for a drug that is saving the life of a woman was cystic fibrosis? Criminal.
Knowing a few people with CF - there is absolutely no way they can afford that. Should be on the PBS. Now. 🙏🏻
Family of Jess Ragusa given six months to live due to cystic fibrosis diagnosis makes huge sacrifice to ‘pay for her life’ | 7NEWS https://t.co/m6rc7HsIWF
Australian Health Minister: “we are ready to go”, @VertexPharma just have to accept the PBAC recommendations and 2200 #cysticfibrosis patients will have a brighter future. Time for Vertex to stop holding sick patients to ransom & let them breathe. #GlobalCFFamily#Trikafta4All
Exciting news today with a Yes from the PBAC - a big step forward to accessing #Trikafta. There are further steps though and we implore @VertexPharma & @GregHuntMP to negotiate & list quickly! #CFCantWait