Troy Ledbetter

MLB Travel Parenting History DIY & Home

[Troy Ledbetter @troy_ledbetter]

My plea to get NurOwn approved now for als. @DonaldJTrumpJr @realDonaldTrump @VP @FLOTUS @US_FDA #ALSplea

[I AM ALS @iamalsorg]

What's our #MondayMotivation?

Remembering everything that we accomplished last week and thinking of the weeks to come getting sh*t done because we have this community of warriors alongside us.

[elsie johnson @elsiejo22955940]

We can't afford to stand still, each day without progress will cost lives. If we were a sinking ship we wouldn't wait until we could fix the hole, we would use whatever we had to right the ship. Curing ALS is a long term goal, staying alive will do until then. #survivALS #NurOwn

[Nancy Kerr @nancykerr162]

You’re right. We need these existing therapies NOW! Need people who can get this done NOW, but won’t find them amongst the FDA leadership. @realDonaldTrump

[David Peck @DavidPe95788399]

Please @POTUS give The ALS community a GREAT 👍 gift an Executive Order for NurOwn by Brainstorm

[Kim French @kimfrench0405]

⁦@US_FDA⁩ ⁦@FDAMedia⁩ ⁦@FDACommissioner⁩ ⁦@SecAzar⁩ ⁦@HHSGov⁩ ⁦@SpoxHHS⁩ ⁦@HHS_ASH⁩ why would anyone especially in this position treat terminal patients and their families like this https://t.co/eLksYy2DSP

[No More Excuses ALS Watchdogs! @als_now]

Let me get this straight. In 2019, several safe, viable ALS therapies exist that could be deployed NOW to try to slow this evil disease down- but we're debating whether or not a known jerk acted like jerk in a meeting? HE DID. And if I hear "in the future" with ALS once more...

[No More Excuses ALS Watchdogs! @als_now]

This man does SO much for ALS- everybody knows he deserves this one! How about a special little gift to ALS? Ask the President to create a new pathway for urgent ALS therapy approval now, and congrats Steve. #thankssteve #asksteve #NurOwn #MND #ALS #ENDALS https://t.co/GD4a3KY73E

[Brian Wallach @bsw5020]

There are over 300,000 living with ALS today. Add to that the family and friends and millions are touched by this diseases.

You one?

If so, share your story or simply reply. I’ll retweet and follow ya.

Our stories should be shared. Lives lived together and outloud. Every. Day.

[Benjamin Stecher @Neuronologist1]

"Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has."

- Margaret Mead