Timo Strotmann

Tech Enthusiast - Software Engineer -

[Timo Strotmann @TweetingTimo]

@kirsten_roder Ich meine auch nicht das man nur gut genug pacen muss das man wieder gesund wird sondern das es wenige glückliche gibt die es eben nur mit paving schaffen schaffen. Die die es nicht schaffen machen nichts falsch oder so sondern haben einfach weniger Glück

[Timo Strotmann @TweetingTimo]

A genuine question for the ME/CFS community:

Do we agree that partial and even full remission can occur in patients meeting the CCC, without medication, through pacing alone?

[Timo Strotmann @TweetingTimo]

@kania_felix Alles gute Felix und vielen Dank für deinen Einsatz

[Timo Strotmann @TweetingTimo]

True. 50–60% of clinical trial failures are due to lack of efficacy. Yet it can take ~7 years to get answers.

Meanwhile, companies often put other candidates on hold while waiting for results.

Even halving the failure rate would still leave far too many failed trials.

I believe we need to tackle costs, time and success rate to really leverage the full potential of ai.

[Timo Strotmann @TweetingTimo]

As I’ve said before: AI × Bio won’t deliver meaningful benefits to patients in the near future unless we tackle the real bottleneck in drug development, clinical trials.

Discovering new drugs means little if we can’t evaluate them faster, cheaper, and more successfully.

[AreWeCuredYet @AreWeCuredYet]

Clinical trials are the biggest bottleneck in modern drug development.

⏳ 6–7 years
💰 $117M per candidate
❌ 86% fail

AI still needs to prove it can reduce time to market, cut costs, and improve clinical trial success rates.

[Timo Strotmann @TweetingTimo]

The @MECFSResearch Foundation 🇩🇪 and @weandmecfs Foundation 🇦🇹 have raised millions for research in just a few years, already rivaling some established neurological research foundations!

Huge thanks to everyone involved! ❤️

The potential is enormous. Every industrialized country should have one!

[Timo Strotmann @TweetingTimo]

Persönliche Einschätzung: Die Symptomatik ist bei vielen ME und LongCovid Patienten schwankend. Wenn ich jetzt ein Medikament gebe welches über Monate eingeschlichen wird ist die Wahrscheinlichkeit einfach sehr groß das sich in der Zeit der Zustand verändert. Da grade in schlechteren Phasen neue Medikamente getestet werden erhöht nochmal die Wahrscheinlichkeit das es zu einer Verbesserung kommt die aber auch einfach dem natürlichen Verlauf geschuldet sein kann.

[Timo Strotmann @TweetingTimo]

@steipete Like it, but unfortunately still far away from reality.

I‘m suffering from ME/CFS, a common and severe neurological disease which I believe will unfortunately not be solved by AI in my live time.

To cure diseases we need much more than just a better AI.

[Timo Strotmann @TweetingTimo]

@verenabee @HumanManifold Bin ich bei dir, ich wollte nur wissen ob die Orgas das generell aus dem Schirm haben insbesondere wegen der anstehenden NKLM 3.0

[Timo Strotmann @TweetingTimo]

Weiß jemand, ob eine deutsche ME/CFS-Patientenorganisation aktuell daran arbeitet, ME/CFS fest im Medizinstudium zu verankern?

[Timo Strotmann @TweetingTimo]

@verenabee @HumanManifold Ich würde eigentlich erwarten das die DG ME/CFS die auch schon mit der DGN in Kontakt ist hier in den lead geht.

[Timo Strotmann @TweetingTimo]

@Magnusora FND could be included as well. I’m not an expert, but from what I’ve seen, prevalence estimates vary quite widely, ranging from 0.05% to 1.6%.

[Timo Strotmann @TweetingTimo]

I just spoke to an 8th-semester medical student.

Not a SINGLE class on ME/CFS.

A neurological disease affecting potentially 70 MILLION people worldwide, yet future doctors aren’t even taught about it.

This isn’t just an educational gap. It’s a medical scandal.

[Timo Strotmann @TweetingTimo]

@RANfromChester I’m from Germany and it was a German med student.

[Timo Strotmann @TweetingTimo]

@docmartin22 Was ME/CFS ever covered during your medical education?

[Timo Strotmann @TweetingTimo]

@malcolmisinhell Good point. But the real message of this infographic is simple:

ME/CFS is a common neurological disease, yet medical students often learn nothing about it.

And this was already a major problem before the pandemic doubled the numbers.

[Timo Strotmann @TweetingTimo]

Fair questions! The WHO estimates 3.1 billion people have headache disorders, including migraines and tension-type headaches.

ME/CFS prevalence estimates range from 0.2–1% (~16–80 million), with the lower estimate predating COVID. MedUni Vienna cites up to 70 million.

These aren’t exact numbers, but they give a good sense of the scale.

And no matter how you look at it, ME/CFS remains one of the most common neurological diseases worldwide.

[Timo Strotmann @TweetingTimo]

@daniel38608 @tink_ina It’s not.

[Timo Strotmann @TweetingTimo]

@SquashedSiren @tink_ina This are the current numbers from Germany:

🇩🇪 657,000 patients
💰 €32.8 BILLION in annual societal costs
📉 0.73% of GDP

And Germany is even after announcing a research program for PAIS only investing 50Mio € per year.

https://t.co/IipfwzoUmv

[Timo Strotmann @TweetingTimo]

Wenn ihr euch mit ME/CFS beschäftigt, dann schaut nicht nur auf die Erkrankung und das unvorstellbare Leid der Betroffenen.

Beschäftigt euch auch mit dem medizinischen Skandal dahinter: jahrzehntelange Stigmatisierung, fehlende Forschung und eine katastrophale Versorgung.

Das darf nicht länger ignoriert werden.