I wrote a new essay about growing up with SMA, the incredible progress in treatments, and the unexpected feelings that came with imagining a different version of my life.
It's a personal one. I'd love for you to read it!
https://t.co/Zi9BsT1U6L
In second grade, I accidentally became a musical chairs champion because nobody figured out how the rules applied to my wheelchair.
I wrote about that, disability, and the difference between being included and actually participating.
https://t.co/CWkJHVgrSh
When I was a teenager, my dad and I snuck onto the field at Dodger Stadium during batting practice.
We didn't have credentials, and I didn't tell a single lie.
Here's how that happened:
https://t.co/xurxIlYTIj
I spent my whole life hoping there would eventually be a treatment for SMA.
Then there finally was one.
Years later, I’m still trying to understand why I needed it to stop.
My new essay:
Finally, a Treatment
https://t.co/RpHM6gQpHM
Traveling with a disability scares the living daylights out of me. But should it?
New essay: Traveling with a Disability and All the Baggage That Comes With It
https://t.co/CssyiOpojK
I spent a lot of my life wondering how dating would even work when I need help with things like showering, getting dressed, going to the bathroom, and rolling over in bed.
“In Sickness and in Health” is out now.
https://t.co/62SGUMZcnL
Relationships are so beautiful when you and your partner are actually good friends. You show up together, share inside jokes, talk openly, have fun, and totally vibe like besties. They shouldn’t replace your actual friends but it’s so amazing when the dynamic isn't just romantic.