UKPIPS

UK Primary Immunodeficiency Patient Support. Message us to show your support. Brand New Website Just Launched. Show Your Support!

[Old Llandoverians @oldllandoverian]

@UKPIPS https://t.co/2qlAowVtjM

Interview with the inspiring Rebecca Griffiths! A huge supporter and fundraiser of UKPIPS #RaiseAwareness

[Genetic Alliance UK @GeneticAll_UK]

We've responded to the consultation on the NHS mandate for 2016/17. You can read this here: https://t.co/s9Zw1Aycao

[Rare Disease UK @rarediseaseuk]

The UK strategy for #raredisease commits to improve education and awareness of rare diseases across the healthcare professions

[steve ffoulkes⚫💙 @steveffoulkes]

"Following our earlier announcements on Facebook and via the Newsletter, UKPIPS Christmas Cards are now available... https://t.co/0jn3hbJFnw

[Alan Thomas @alanROYGBIV]

A True message shown on slide
Via @rarediseasefdn
#raredisease https://t.co/DmW1wLSS0N

[steve ffoulkes⚫💙 @steveffoulkes]

Something for you to participate in https://t.co/ABvWrSOqG9

[steve ffoulkes⚫💙 @steveffoulkes]

UKPIPS is so grateful to our Medical Advisory Panel for the advice and support that they give us. It is a... https://t.co/2ujFLq1nvK

[Rare Disease UK @rarediseaseuk]

You have until Monday 7th December to nominate yourself for our management committee: https://t.co/sx78Z1UDJ6 #raredisease

[INGID @INGID_Tweets]

Congratulations to Emily Carne for winning the RCN "Nurse of the Year". Raising the voice of immunology nursing at national level 👏

[Rebecca Griffiths @Rebeccacjg]

@UKPIPS @GeneticAll_UK @LlandoveryColl @accentureukjobs I've finally updated my blog after 2 years +. https://t.co/PvrYvNChBU😃

[Rare Disease UK @rarediseaseuk]

Two weeks left to apply to be a member of our management committee: https://t.co/CAGoKW30tY

[Rare Disease UK @rarediseaseuk]

Help create the first children's Rare Diseases Centre in the UK @Bham_Childrens https://t.co/Lx0xKAhT0J #raredisease

[Special Needs Jungle @SpcialNdsJungle]

RT @CDC_tweets: Our new rights based toolkit is here so young people know what support they should be getting https://t.co/uXlP7fUDub #YRYF

[Dawn Smith @Dawnmignon]

@INGID_Tweets @primaryimmuneuk @UKPIPS Great! Managing time spent at hospital helps PID people get on with life

[steve ffoulkes⚫💙 @steveffoulkes]

This Mandate is the document which the Government tells NHS England the minimum standards it expects it to reach... https://t.co/Y6g8IcpJk2

[Beacon for Rare Diseases @RareBeacon]

"Patients help companies grow a passion for disease, not just for science". Read our #ODWC #pharmaintegrates blog https://t.co/svr0plq2zR

[EURORDIS-Rare Diseases Europe @eurordis]

Patient Solidarity Day is on 5 December @PatientSolDay @IAPOvoice. More info: https://t.co/f0SY4iNmjW #patient #RareDisease

[Care Quality Commission @CareQualityComm]

It's #CarersRightsDay.

@CarersUK are ensuring carers get the support they're entitled to https://t.co/5Otc2bEPH3

[Rebecca Griffiths @Rebeccacjg]

@UKPIPS had a lovely day filming with @Baxalta on Monday! They are such a fab team! 😃 #spark #patientsmatter #MD&Me