Dawn Smith

Alternately living with/recovering from complications of CVID. Former NHS clinician/leader. Committed to collaboration for improvement

[Dawn Smith @Dawnmignon]

Many times+people of whom I’m proud: for Day 5 #RareDiseaseDay I’ll choose getting myself together to tell my story https://t.co/VKLERVDGiA

[Dawn Smith @Dawnmignon]

#livingwithPI Thanks to all wonderful people.taking these steps alongside me.
#CVID #chronicillness #NHS70 https://t.co/C95qe7DTAv

[maxandmelia.com @MaxandMelia]

Thank you to everyone who wrote a message to Dawn, I gave it to her on Saturday. Sadly, she is still in intensive care so if you would like to send her a message you can tweet @Dawnmignon and help raise awareness of #CVID

[Dawn Smith @Dawnmignon]

@lifesmarrow Keep doing what you can do 👍Strength to you too

[Dawn Smith @Dawnmignon]

Thanks for telling your story @lifesmarrow on #NHSsavedmylife Thanks too for your blog https://t.co/eJkSk8x08k giving the nuanced back-up drop to #livingwithPI. I get it, I don't always do it, but I get it: 'The Time is Now'
#PrimaryImmunodeficiency

[Simon Bostic @lifesmarrow]

@Dawnmignon Thanks so much Dawn. Am glad you liked it. I have #CGD and am still #livingwithPI as my graft whilst saving my life and giving me 6 years of normal childhood, was too small to last a lifetime. I don't always do it either. But when I feel up to it, I do what I can. Stay strong!

[Dawn Smith @Dawnmignon]

*back-drop* spell-check gone mad! 😀

[Dawn Smith @Dawnmignon]

Good to see some coverage on #NHSsavedmylife of this #RareDisease #primaryimmunodeficiency; amazing patients like @lifesmarrow and the achievements of equally amazing specialised #NHS services @RoyalFreeNHS as we celebrate #NHS70

[Dawn Smith @Dawnmignon]

@crocusCoUk Thanks. And thanks for sending the plants so carefully protected...you've made someone else very happy too. New box to stand in! 😃🐺

[Dawn Smith @Dawnmignon]

Been zapped by a sleepy, sweaty, shivery bug! #primaryimmunodeficiency What's making my day are these three guys bought with my birthday voucher from @crocusCoUk. Can't wait to get them settled in my little #urbangarden sanctuary
#livingwithPI #chronicillness #wellbeing

[Simon Bostic @lifesmarrow]

Anything which increases people's chances of finding a #stemcell donor is worthwhile. Having a transplant could be the only chance of surviving #bloodcancer and #primaryimmunedeficiency https://t.co/IAdcs58zLj

[Dawn Smith @Dawnmignon]

Good to see some coverage (no matter how brief!😉) of this #RareDisease #primaryimmunodeficiency; amazing patients like you and the achievements of equally amazing specialised #NHS services @RoyalFreeNHS as we celebrate #NHS70
#livingwithPI https://t.co/DMme1Nyiyi

[Simon Bostic @lifesmarrow]

Watch #nhssavedmylife on @ITVTonight 730pm. Was a pleasure to take part in this positive documentary. My brief section covers my bone marrow transplant, a world first in 1973.

[Dawn Smith @Dawnmignon]

@lifesmarrow @ITVTonight Good to see some coverage (no matter how brief!😉) of this #RareDisease #primaryimmunodeficiency; amazing patients like you and the achievements of equally amazing specialised #NHS services @RoyalFreeNHS as we celebrate #NHS70
#livingwithPI

[Simon Bostic @lifesmarrow]

"I wanted to live deep and suck out all the marrow of Life" Henry Thoreau
This quote inspired me to blog about my life, living life to the full in the shadow of death with chronic illness and disability. https://t.co/YHNWeUrSEF
#chronicillness #primaryimmunedeficiency #stemcells

[Dawn Smith @Dawnmignon]

@anyadei Agree and offering time and support to develop these skills demonstrates that the good intention of people in these roles is valued

[Dawn Smith @Dawnmignon]

Yes, it's important to ensure that roles are driven by matching values and skills as opposed to attaching new titles to old behaviours. #personalisedcare #coordinated care https://t.co/Ws3cWuSJju

[Dawn Smith @Dawnmignon]

@iammoshow Smiling back. She has happy dreams!

[Dawn Smith @Dawnmignon]

A very relevant blog for all with #chronicillness spanning multiple specialisms/departments. Highlights the joint role of making appointments and decision-making as effective and efficient as possible and that patients are not passive recipients of care. https://t.co/vk1h6rvBFb

[Royal Free London @RoyalFreeNHS]

Watch out for our amazing patient, Simon Bostic, who is featured on 'ITV Tonight' tomorrow at 7.30pm. He's the one in the bottom left of the picture. Read his incredible story and find out why Dr David Lowe calls him an 'inspiration'. https://t.co/kLNY1QjtRF

[Dawn Smith @Dawnmignon]

@MAOberthier @TheSeatedView That's how I'd see it too

[@NHS @NHS]

#Hellomynameis Ben and I’ve recently become an amputee.

I was hit by a car when helping a driver on the M42.

I am currently @WorcsAcuteNHS where I’m continuing my recovery & I've managed to stand up for the first time since the crash.

Find out more: https://t.co/2SzOJTUiMX

[Tomaz Garcez @tgarcez]

@primaryimmuneuk @UKPIPS @theukpin @HAE_UK @CGDSociety I’m running the Manchester 10k for immunology training through the MFT charity. Please consider sharing this tweet with your followers! https://t.co/lLwL133Tmw