Primary Immunodeficiency Support (IPIA)

Primary Immunodeficiency Support (IPIA) supports patients & parents affected by a #primaryimmunodeficiency in Ireland. #PI #rarediseases #PID

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

@Baxalta @HSElive @irishexaminer @Irish_health #PID #PI patients in Ireland need Medical Card/Right to home Therapy

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Explore the toolkit here: https://t.co/8vuwUBISZQ Thank you for supporting World PI Week and helping us share the IPIA Patients Toolkit, Together, we can raise awareness, support one another, and grow a stronger PID community in Ireland. #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Become part of the IPIA community: https://t.co/8vuwUBISZQ No one should face primary immunodeficiency alone. This World PI Week, we’re highlighting the importance of connection, support, and belonging through the IPIA Toolkit #WorldPIWeek #IPOPI #IPIA #PIDCommunity #JoinIPIA

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Explore the toolkit and help grow IPIA: https://t.co/8vuwUBISZQ Getting a diagnosis and understanding treatment can be overwhelming, Patients Toolkit, helps patients and families learn more about testing, diagnosis, and treatment options.#WorldPIWeek #IPOPI #IPIA #PatientRights

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Living with PID https://t.co/D3AxBuWHrB can affect everyday life, practical support is so important. IPIA Toolkit, shares guidance. join IPIA to support our work #WorldPIWeek #IPOPI #IPIA #PID #PatientSupport #JoinIPIA

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

During #WorldPIWeek, IPIA celebrates St James’s Hospital milestones! ANP Aoife rep the team at IPOPI’s PID Forum in Brussels on "Growing Older with PID." Plus, their #Immunodeficiency Service earned QPIDS accreditation—first outside the UK! #StJamessHospital #IPIA #IPOPI #PID

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Join IPIA today to connect, advocate, and build strength together! https://t.co/8vuwUBISZQ This World PI Week 2026 Patients Toolkit – your guide to understanding PID, daily support, diagnosis, treatment, advocacy, research and much more #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

World PI Week is here, and we’re delighted to launch the IPIA Patients Toolkit that brings together trusted information and practical support for people living #PID Explore the toolkit and join IPIA #WorldPIWeek #IPOPI #IPIA #JoinIPIA https://t.co/8vuwUBISZQ

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

World PID Week starts today! introducing the new IPIA Tool Kit — trusted information, practical support and community resources for PID.
Read here: https://t.co/xdrQIGUFqW
#WorldPIDWeek #PIDAwareness #PrimaryImmunodeficiency #IPIA #ToolKit #RareDiseaseAwareness #IPOPI

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

“I control the illness — not the other way around.”
A powerful member story about resilience, courage, and living fully with PID. Read more here: #IPIA #PID #WorldPIWeek #WeCantWait #IPOPI #CVID #PatientStory #PIDAwareness https://t.co/D3AxBuWHrB

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Calling all PID Patients and supporters!

Every story counts — let’s make sure the Government hears ours. 💪 #PIDawareness #InvisibleIllness #DisabilityRights #Ireland #IPOPI #HSE #healthministry
Have your say here:
https://t.co/XnQvIMCorW

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

👉 Take the survey here: https://t.co/NfMX4SbMXp
Let’s make sure the Irish patient voice is heard across Europe! 🇮🇪💙#IPIA #PrimaryImmunodeficiency #PatientVoice #RITA #RareDiseases

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Happy Holidays everyone !!

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Thank you @stjamesdublin for making this possible and supporting IPIA #worldPIweek

[St James's Hospital @stjamesdublin]

Today members of the Immunology Team met with patients and staff to mark #WorldPrimaryImmunodeficiencyWeek 🏥

The team celebrated the occasion and raised awareness of Primary Immunodeficiency🩺

#WorldPIWeek2025 #SeeTheUnseen

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

👀 #WorldPIWeek2025 #SeeTheUnseen #IPOPI #Ireland #IPIA 💙"

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

#NewProfilePic

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

https://t.co/QXDKmY7G5s #IPIA #IPOPI #PID #Primayimmunodeficiencies #PIDawareness

[Primary Immunodeficiency Support (IPIA) @ipiainfo]

Every year we join with @stjamesdublin to celebrate WPIW - Thank you for your support ❤️

[St James's Hospital @stjamesdublin]

This week is World Primary Immunodeficiency (PI) Week, a campaign which aims to raise awareness and improve diagnosis and treatment of PIs.

Our Immunology Team have been celebrating #WPIWeek by promoting the five key principles of patient-centred care in PI.