Unite ALS

Unite is developing an all-in-one platform to bridge the gap between the #ALS community & researchers to accelerate the development of treatments & cures.

[Taner Dagdelen @Tkdags]

Congratulations to everyone in the ALS community who worked tirelessly to make today’s approval happen! Here’s to notching many more wins from here!

[Taner Dagdelen @Tkdags]

@sandymorris333 @KylanMorris1 Sandy,

Thank you for the enormous gift you were and continue to be for all of us.

With compassion, discipline, love, and unwavering faith in what people are capable of, you raised the bar for all of us. You spoke to everyone’s better angels. [1/9]

[Unite ALS @unite_ALS]

These are the words that first come to mind when we think about those living with #ALS. On the hard days, remember: You are strong. You are brave. You are fierce. You are courageous. And that's how others see you, too.

Tag someone who needs to see this today.✨

[Unite ALS @unite_ALS]

When Lisa Cross began living w/ #ALS in 2017, she thought her acting career was over. Yet, she was recently cast as a leading character in the upcoming film, "New Life" about a woman who is diagnosed w/ ALS. Hear how she auditioned & landed the role: https://t.co/D7Z29mbzEV

[Unite ALS @unite_ALS]

Those diagnosed with #ALS may be able to find life-affirming drugs and treatments that prolong life and minimize pain. If you're having trouble finding clinical trials that exist for you or a loved one, it's free to contact a Unite patient navigator here: https://t.co/vf6QOJNPVC

[Unite ALS @unite_ALS]

Founding member of the Zac Brown Band, John Driskell Hopkins, recently shared his diagnosis of #ALS: Read about his journey, his early symptoms, and his plans for the future: https://t.co/ouBDmnX7IS

#als #alsawareness #alsresearch #alsadvocate #alsadvocates #uniteagainstALS

[Unite ALS @unite_ALS]

Do you feel that your #ALS story could help researchers? It can! Your health data exists in different places, but it’s not connected in the best way for researchers. Register with our platform & we'll show you how simple it can be. Every story counts. https://t.co/xQkDOAYJhU

[Unite ALS @unite_ALS]

If you have ?'s about #ALS, we have experts available to help. Within the ALS Answers app, medical professionals are available to answer questions (anonymously if preferred) about ALS. You don't have to battle this alone. Download the ALS Answers app in the Apple store today.

[Unite ALS @unite_ALS]

ILB, an investigational therapy in the treatment of ALS, shows safety and efficacy in slowing disease progression in phase 2 clinical trials. Read more: https://t.co/uDyBgXpwmT

#als #alsawareness #alsresearch #alsprogress #alsinthistogether #uniteagainstALS

[Unite ALS @unite_ALS]

When you keep going, despite the fear - that is #courage. Don't let fear stop you. It's going to be there. Yet, it's when we choose to move forward anyway - that's where real courage lives. Here's to all of those showing up with courage today. 💪
#cureforALS #uniteagainstALS

[Unite ALS @unite_ALS]

Experimental therapy, TQS-168, from Tranquis Therapeutics granted "orphan drug" status. What does this mean? Learn how it could benefit #ALS patients here: https://t.co/8bNMgV69eH

[Unite ALS @unite_ALS]

The Unite concierge program helps review #ALS clinical trial options you may qualify for. No more guessing. No more wondering. Just genuine help accessing potential life-affirming drugs and treatment. A Unite patient navigator is waiting to assist you: https://t.co/bzSwiB35xy

[Unite ALS @unite_ALS]

Mount Sinai researchers release study findings showing that the central nervous system AND immune system may be involved in amyotrophic lateral sclerosis (ALS). Here's what they discovered: https://t.co/oHu2lvqFI2

#als #alsresearch #alsinthistogether #uniteagainstALS

[Unite ALS @unite_ALS]

Meet Phil! Phil has made his life’s work improving the fight against #ALS. He is active with many patient advocacy organizations and serves as a volunteer patient advisor to several companies working on ALS therapies and technologies. Phil, we appreciate all you do!

[Unite ALS @unite_ALS]

Data from music therapy pilot study shows positive benefits in #ALS patients. Read more about the findings: https://t.co/MRK8a88Q9D

[Unite ALS @unite_ALS]

A new study has been launched to determine the long-term efficacy and safety of Reldesemtiv in the treatment of #ALS. To learn more about accessing the open-label extension, talk to a Unite patient navigator today: https://t.co/vOiKQ9ElLa

[Unite ALS @unite_ALS]

During the Phase I clinical trial, results demonstrate decreases in inflammation and better protection of upper motor neurons. Learn more here: https://t.co/TSLZt10C7v

[Unite ALS @unite_ALS]

In case you need them, we're sending positive vibes your way today.✨#ALSsupport #positivity #motivation

[Katie Couric @katiecouric]

I am honored to be an EP of “No Ordinary Campaign”, a project about two remarkable humans who are leading the fight against ALS. If any of you will be in Aspen next week— join us on Monday night as part @aspenideas ! Please join us… @bsw5020 @iamalsorg
https://t.co/1W8cj6bTMv

[MGH Neurology @MGHNeurology]

Please join us this Thursday 6/30 at 5 pm Eastern for the HEALEY ALS Platform Trial webinar with special guest Gale Kittle, RN, MPH, Director of Outcome Measurements Training. Register here: https://t.co/fTEUHQmyEd

#ALS #MND #HealeyHope @MDAorg