Valerie Brennan

life is for living…

[Valerie Brennan @valbrenn]

@theresa_mbyrne @oacsireland @roinnslainte You are absolutely correct…

[Valerie Brennan @valbrenn]

@oacsireland Hello #inquiry #epilim #sodiumvalproate , financial support please!

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte Communication!
How can they be sending out these inaccurate media messages without consulting with the actual source…parents who know and live with this everyday?!

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte Frustrated as a mother who has epilepsy, all this causes unnecessary stress and anxiety for us parents and our children

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte Frustrated as a mother and this causes unnecessary stress and anxiety for our children and ourselves

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte My pharmacist said they knew this media was going out two weeks ago ! Then they received it last week and put it on display… not all pharmacists are willing to put it up..why? Lack of awareness and communication

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte There’s no mention of #Epilim on the poster in the pharmacy

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte Why does the tablet on the poster look like a paracetamol, #Epilim is a purple tablet and always has been!!

[Valerie Brennan @valbrenn]

@oacsireland @roinnslainte Heartbreaking to walk into my pharmacy and see this on the counter…no warning whatsoever, what’s the story??

[OACS IRELAND @oacsireland]

We would encourage parents to come forward to take part in the #inquiry into the #historical use of #Epilim Sodium #Valproate medication in #pregnancy
All harm done to Irish children in was
#Foreseeable
#Preventable
#Reportable
@LeoVaradkar @DonnellyStephen
@roinnslainte

[Valerie Brennan @valbrenn]

@epilepsyireland @IlaeWeb @IBESocialMedia Congratulations to all in @epilepsyireland … last 2 evenings were an amazing opportunity for those of us affected by epilepsy to listen and learn from some of the world’s best minds in this field #epilepsy

[Valerie Brennan @valbrenn]

@Emma4facs @JanetWilliams99 @Infactuk Were you in attendance at these conferences Emma?

[Rebecca Bromley @rebbromley]

Well done Matt for excellent work moving forward our understanding of the neurodevelopmental outcomes of children and adults with diagnosed Fetal Valproate Spectrum Disorder. Thank you to all the families who took part!

[OACS Charity @OACSCharity]

@PSCommissioner @epilepsyireland @conwaywalsh @oacsireland #Valproate #ENTISDublin23
Brilliant Presentation by @karen_keely and @rbbromley At ENTIS Dublin 23 conference. Let's hope that EU can extend the Epilepsy Registers to include previous births to follow Adulthood

[OACS IRELAND @oacsireland]

We have been liaising with @BBCfileon4 for many months on this programme. We look forward to the outcome.

File on 4 asks if the health #regulators in the UK and the company who make it, #Sanofi, did enough to inform patients of the severity of the drug's risks soon enough.

[@Karen.K @karen_keely]

#Valproate
#Epilim #inquiry to move forward.
Ciara McPhillips partner at specialist litigation firm Michael Boylan LLP, told Irish Legal News that “some momentum” is now necessary. Read more ⬇️
https://t.co/I3LHCx9Sjk

[Valerie Brennan @valbrenn]

@oacsireland @BBCfileon4 @BBCRadio4 Heartbreaking 💔 for all families affected

[Rebecca Bromley @rebbromley]

@oacsireland @DonnellyStephen @epilepsyireland Hard work pays off, well done @oacsireland and @epilepsyireland! Families need to be heard and lessons learnt.

[Epilepsy Ireland @epilepsyireland]

Earlier today, Minister @DonnellyStephen received Government approval to establish a non-statutory inquiry into the historical licensing & prescribing of Sodium Valproate in Ireland. This is a welcome development and you can read our & @oacsireland's reaction on our website.

[Valerie Brennan @valbrenn]

@OACSCharity @oacsireland Good news