Join @wearesrna on February 28 to celebrate #RareDiseaseDay! Tune in to the Rare Roundtable and hear from special guests as they open their hearts, share their #rare experiences, and discuss positively embracing a new life. More: https://t.co/uF5J8eDbp9 #RareDoCare
Your voice matters! NORD & @rarediseasediv1 have developed a survey of underrepresented #RareDisease patients & caregivers to better understand their experiences and uncover gaps & barriers to accessing care. Take the Rare Disease #Diversity Survey today: https://t.co/VWpKkpvg8I