For rare diseases, finding a way to include the #patient perspective in decision-making can be crucial. With answers from 117 people with #haemophilia, we can now present results about their preferences for #GeneTherapy
https://t.co/QKnWnHVqLL #PatientPreferences@van_overbeeke
Webinar recording available! @van_overbeeke & colleagues investigated #haemophilia#patients’ preferences for #GeneTherapies. Learn about how the preference study was designed, what the results were & what the impact might be!
https://t.co/a6fzfPoeat
#PatientPreferences @IMI_JU
Join us at 14:00 CEST when we talk a study that has investigated #haemophilia#patients’ preferences for #GeneTherapies. Learn how it was designed, what the results were & what the impact might be in today's webinar!
https://t.co/CvPaW9pRWm
@IMI_JU #PatientPreferences
New #Haemophilia article on patient preferences for #GeneTherapy shows the value of preference heterogeneity and patient education on novel treatment acceptance. Open Access⤵️
https://t.co/0OETmBCvZH
Remember to register for our #webinar tomorrow to learn all about #patient involvement in patient preference studies! https://t.co/scvNohi7SU
Or discover other @IMI_PREFER webinars here:
https://t.co/IslaEvGcYF
#PatientPreferences
Involving patients from an early stage when designing patient preference studies (what aspects of different treatments really matter) is something that @IMI_PREFER believes has huge benefits. Find out more about why in their webinar on 11 June >> https://t.co/ythbgt2zBO
In March, the WFH held the first #WFHGeneTherapy round table session of 2021. At this closed meeting healthcare professionals met to discuss the future direction of #genetherapy in #hemophilia. Learn more about what they discussed here: https://t.co/1byH2GHsN9
What are the research needs for #HTA today and tomorrow? And how can we ensure HTA and payer decision making includes the #patient perspective?
At the @EUnetHTA forum today? Don't miss PREFER's Irina Cleemput from @KCEfgov in the 2PM session.
https://t.co/DPAHveySwP
What is a #PatientPreference & what is the value in medical product decision-making? Join us on 26 April at 16:30 CEST to discuss the value of #patient preferences in the #MedicalProduct life cycle!
👉 https://t.co/uUl1qENx8o
Great to work with the @IMI_PREFER on access to innovative innovative medicines issues. This paper sets the framework in #PatientPreferences to Assess Value IN Gene Therapies: Protocol Development for the PAVING Study in Hemophilia. https://t.co/XyfUQhSObW
New Research: Patient Preferences to Assess Value IN Gene Therapies: Protocol Development for the PAVING Study in Hemophilia: Introduction: Gene therapies are innovative therapies that are increasingly being developed.… https://t.co/uF3vspVmXN #medicalcare#clinical#pathology
First issue of 2021 of @PatientJournal now available: https://t.co/puHSquTojo
Lots of great articles including: participant understanding in DCE (@aliepea), conceptual model of CLL to understand pt experience (@tobyeyre82), and the use of pt preferences in HTA (@van_overbeeke)