For the love of Harry 💙💙💙

Harry passed away on the 18th November 2016, a few days after his third birthday. Beautiful and brave.... now a very special Angel 💙 For the love of Harry 💙

[For the love of Harry 💙💙💙 @Verybraveboy]

We are heart broken to say that our beautiful baby boy lost his final battle yesterday evening. Love you Harry 💗https://t.co/jjNzXTCASd

[Mrs A 💙💙💙 @AnnableKerry]

So proud of this review. It highlights the very reasons I wrote Harry’s story. For professionals to learn #maternity #paediatrics #neonatology #palliativecare #childrenshospice

https://t.co/2WMaZgACdN

[Mrs A 💙💙💙 @AnnableKerry]

@David_Cameron @OHRareDisease My son was diagnosed three years after he passed away with the very rare genetic condition that caused all the damage to his organs. He was the 13th in the world to be diagnosed with Turnpenny Fry syndrome. There are now about 30 cases in the world.

https://t.co/15LGVwvUTD

[For the love of Harry 💙💙💙 @Verybraveboy]

@AllisonPearson Maybe , as sad as it is. It’s what is needed ? The NHS is on its knees.

https://t.co/rDwGcAepuK

[Mrs A 💙💙💙 @AnnableKerry]

@SophyRidgeSky My maternity care ( or should say no care) with a placenta accreta. Followed by the NICU story. Donations are going to the hospice who supported us in caring for our son.

https://t.co/WSmnIIDwFl

[For the love of Harry 💙💙💙 @Verybraveboy]

Donations from every sale are going to the Dougie Mac children’s hospice who supported us so well 💛🌻

[Mrs A 💙💙💙 @AnnableKerry]

@ITVNewsPolitics @LucyGoBag Read my book … my son spent ten weeks in a NICU unit and was discharged with undiagnosed major brain malformations and heart abnormalities. Nobody has heard my voice about my son. I was told I was over anxious by the doctors https://t.co/PRCXBXPdKc

[Mrs A 💙💙💙 @AnnableKerry]

I’m delighted with the amount of people who have taken the time to read Harry’s story. Please keep sharing for me and telling people about the book .Please remember to write a review on Amazon. Donations from every sale are going to the children’s hospice who supported us 💛🌻

[BirthTrauma @BirthTrauma]

Kerry's story of birth trauma and the loss of a child. A donation from every copy sold will be given to the children’s hospice who supported the family. https://t.co/1EfYks7LoS

[Mrs A 💙💙💙 @AnnableKerry]

I believe medical misogyny was at play in my pregnancy care. I have written a book about it and my young son who had a rare genetic condition. Please take a look

https://t.co/kaqj37e4T9

[Mrs A 💙💙💙 @AnnableKerry]

HARRY - Forever loved, forever missed, forever three out now on Amazon. Donations are going to the Dougie Mac children and young adult hospice. #palliativecarenurse #palliativecare #hospice #childrenshospice #doctor #endoflifecare #childloss #grief

[Mrs A 💙💙💙 @AnnableKerry]

Just how did a baby spend ten weeks in a NICU unit. His mum be told she was over anxious and they discharged him. For it to be discovered the baby had brain and heart malformations? Please read Harry’s story https://t.co/Qv6h6cASPi

[Mrs A 💙💙💙 @AnnableKerry]

I was ignored in my pregnancy with a placenta accreta. I was ignored in the NICU and after ten weeks my son was discharged with undiagnosed brain and heart malformations. He died at three. #maternitysafety #nicu #birth #palliative #mum https://t.co/oC1EIaoCqI

[Mrs A 💙💙💙 @AnnableKerry]

An important read for all medical professionals especially maternity teams, neonatal teams, paediatric teams, palliative care teams and genetics. #rare #genetics #PMG #heart #kidneys #NHS 💙💙💙 https://t.co/0tzubQYeSC

[Mrs A 💙💙💙 @AnnableKerry]

HARRY - Forever loved , forever missed , forever three 💙💙💙 on Amazon now. Donations from every sale are going to the Dougie Mac children’s hospice 💛🌻

#NHS #maternity #NICU #palliative #grief

[Mrs A 💙💙💙 @AnnableKerry]

@MartynPitman My emergency c section led to an Accreta in my second. Women and doctors need to know the risks. Please take a look at the book I have written
https://t.co/gDaCKObKvh

[Mrs A 💙💙💙 @AnnableKerry]

@kiityc I had an energency c section for my first. Totally needed and we both survived. The only problem being is that nobody considered the possibility of a placenta accreta in the second.There is much more to the story sadly https://t.co/qtqbHv4BeU

[Mrs A 💙💙💙 @AnnableKerry]

For change to happen in maternity and NICU ,the stories need to be heard. Please help and RT . Donations from every sale of the book are going to the amazing children’s hospice (Dougie Mac) Available on Amazon 💙💙💙@wesstreeting #maternity #NHS #midwifery #obstetrics #NICU #mum

[For the love of Harry 💙💙💙 @Verybraveboy]

@tdixonholidayel @GBNEWS I am a animal lover and I have cried over pets. They are very much part of our family. But my three year old little boy passed away. Please don’t ever compare him to a pet. I can assure you. His passing is / was/ will be forever so much worse

[For the love of Harry 💙💙💙 @Verybraveboy]

I have written a book about our three years with Harry in the hope that it brings awareness to the many issues that we came across whilst caring for him. 💙💙💙 TikTok - @mysonharrysstory or click on the FB link https://t.co/ApNvKUiaPo

[Anne Jeffers @jeffers_anne]

@joinourboys That 5 years has gone so quickly. Please visit https://t.co/NAQAU6LzbR and donate what you can.

[Join Our Boys Trust @joinourboys]

5 Years Ago Today...💔 Sadly the boys are now in wheelchairs and are not running around as you see them in this video. We MUST end Duchenne and all of the heartbreak it brings💔. #KeepMoving #KeepMarching #NeverEVERGiveUp #DMD https://t.co/dJIq2Lolqp https://t.co/UVHG7NaOiF