Vicente de Carvalho

[Brian Wallach @bsw5020]

ALS patients need access to therapies. Pass it on.

[Brian Wallach @bsw5020]

This is how you get on a plane when you travel in a wheelchair.

To the amazing souls who rock these aisle chairs at @united and beyond: thank you ❤️👊

[Brian Wallach @bsw5020]

It’s Friday night, so F you ALS, let’s roll. #NotToday

[Brian Wallach @bsw5020]

Today I did something I never thought I would do again: slowly, haltingly and with my wife, @sabrevaya, watching me like a hawk, I walked in a pool again...on my own.

Not today ALS. Not today.

[Brian Wallach @bsw5020]

On the 6 pm @united flight thanks to @tips74 and his amazing team. Next stop: DC baby DC.

[Brian Wallach @bsw5020]

Update: we’ve been in the House of Representatives since 10:45 am. Don’t worry, we ain’t leaving ‘till we get the chance to testify and share the ALS story with the world. #ItsTime

[Brian Wallach @bsw5020]

None of us knows what tomorrow will bring, but I know this: we will fight, we will make a difference and we will end ALS, together. #IAMALS
https://t.co/DKTC9GViFL

[Brian Wallach @bsw5020]

To make clear that “we are confronted primarily with a moral issue. The heart of the question is whether we are going to treat our fellow Americans as we want to be treated." #ItsTime #NoMoreDead /End

[Brian Wallach @bsw5020]

My 5 year old’s friend asked her recently why her dad didn’t pick her up from school. She explained that I have ALS and it would take me forever to get there.

So today I surprised her and picked her up from school. Her reaction was e.v.e.r.y.t.h.i.n.g. (sound on).

[ʝøε¥ Ɖrex 🇨🇦 @Joey_Drex]

We must #EndALS

Stay strong Mayuri 👊🏻 💜

[Marta G.A @MartaGA88651995]

An incidence = number of annual deaths is what makes ALS rare.

500.000 people are dying,1 every 90 min.
#ALS #ELA need access to investigational drugs, therapies can't be stuck in research siglos!100% fatal!
#uhc4rarediseases
@vonderleyen
@SKyriakidesEU
@EUpALS @EMA_News

[Marta G.A @MartaGA88651995]

Give ALS sufferers a fighting chance. We urgently need treatments @US_FDA @FDACDERDirector @DrWoodcockFDA @SteveFDA @EMA_News @vonderleyen @SKyriakidesEU @EU_Commission @EUpALS @ALSMNDAlliance

[Eli Oliveira @EliOliv63796578]

@Cylebo 🙏🙏Please contact @EMA_News in order to provide #nurown to #Als community!

#ENDALS #ALS #MND #ELA #SLA
@BrainstormCell is in your side!
#Prime @EU_Commission

[Sadhvi Mayuri Om @Mayuri_Saxena]

Two years ago, I remember taking off my bipap and my lungs didn't expand themselves. I should've died the Spring of 2019, but here I am 2 years later on life support... Ready to kick a$$ #ALS #ACT4ALS

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

2 yrs & 4 requests to Biogen to get access #Tofersen ... all denied. Mayuri deserves a chance to halt the harm from SOD1 gene.

@US_FDA & @Biogen Mayuri is a warrior. Please give her access to a #MedicalArsenal to fight #ALS

#DrugsinBodies #ACT4ALS #EAPNow
#CompassionateUse

[Brittany Mroczek 💜 @cherise77]

@Cylebo The ALS community is anxiously waiting 🙏🏻
Please consider talking to Health Canada or the EU if the @US_FDA is making you do another trial 💜 #NurOwn needs to be approved somewhere so #pALS can finally gain access 💜

[@ALSEUROPE @ALSEUROPE1]

@Cylebo Please $BCLI filing a MA @EMA_News after @AmylyxPharma indicated that appear to be open to greenlight a Phase 2 dataset. Real-world Data generated after EU approval could later support FDA BLA processes @ralph_kern @Cylebo

[Marta G.A @MartaGA88651995]

Give ALS sufferers a fighting chance. We urgently need treatments @US_FDA @FDACDERDirector @DrWoodcockFDA @SteveFDA @EMA_News @vonderleyen @SKyriakidesEU @EU_Commission @EUpALS @ALSMNDAlliance

[Marta G.A @MartaGA88651995]

It is totally devastating to watch someone succumb to motor neuron disease #als #ELA
To watch their rapid paralysis, leaving them unable to walk,talk, eat and ultimately breathe.

Where are the treatments?
@EU_Commission
@mndassoc @EUpALS @ALSMNDAlliance @eurordis @EMA_News