Wishing all our friends, clients, patient participants, and collaborators Happy Holidays and a Happy New Year!
Time to turn off the laptops, turn up the Wham, and pour a glass of mulled wine!
We hope you all have a very happy and restful break.
The myasthenia gravis (MG) treatment landscape is evolving at a rapid pace. In our latest blog, Vitaccess Founder and CEO, Mark Larkin, discusses how recent progress is reshaping both clinical and value frameworks in MG care.
Read the blog here: https://t.co/m43RPTG31I
π Today, on Rare Disease Day, we stand with the 300 million people worldwide living with a rare disease and their families.π
https://t.co/UgOSukpahO
Next Friday, 28th February, we will be celebrating Rare Disease Day.
Rare Disease Day is a global movement to raise awareness and generate change in rare diseases, coordinated by @EURORDIS and 65+ national alliance patient organization partners.
https://t.co/9vBUo2s8L6
To move beyond symptom management to disease modification, remission, and cure, a deeper understanding of immunological diseases is necessary.
Real-world research provides opportunities to gather a wealth of information. Get in touch to find out more. https://t.co/LXXwJhhNPV
The idea behind the Delphi panel is to gain consensus through systematic and structured feedback from a group of subject experts. Learn some tips for conducting Delphi panels in our infographic.
Get in touch with us today at https://t.co/9Em7xDGZPf.
How much does a real-world study cost? Read our blog to understand the costs behind real-world research and learn why spending money on a real-world study could be a worthwhile investment. https://t.co/HwHtAduRvc
Chronic autoimmune and immune-mediated diseases take a toll, not only on patients, but on their families and caregivers too.
Read this case study describing research we conducted to generate patient- and caregiver-reported data in myasthenia gravis.
https://t.co/ieRpptMfu1
What type of data can you collect in a real-world immunology study?
We've got immunology on the mind at Vitaccess this month. Contact us at https://t.co/EltI5h6J2y to speak to a member of our team and find out how we can support your evidence generation needs.
Have a patient-centered research need, but not clear on the optimal study design?
Get in touch to chat through your objectives with our experts and we can produce a high-level summary of the possible study design. https://t.co/7RNZXl67Vt
For a comprehensive understanding of complex immune-related diseases, it is important to capture data from a range of sources.
Work with our experts to identify and select the data sources and outcomes most relevant to your research questions.
https://t.co/Lq3cpHXjB4
The two sides of having a sibling with a medical condition.
To learn about our research in the fields of family, caregiver, and sibling impact, get in touch at [email protected].
We offer flexible research opportunities with existing and upcoming global registries. Get in touch to discuss our syndicated solution. https://t.co/ym3KHzqXT8
The Vitaccess team will be taking a break and we will be closed for business until Thursday 2nd January. We wish you all a joyful and peaceful holiday!
'Real from start to finish: making the most of real-world data from disease registries across the product lifecycle'. In this blog, we shared some insights from our experiences with building disease registries. https://t.co/V5MmM0kDUe #registries#RWD
What do you know about our patient-centered outcomes service offering? We are experts in understanding, measuring, and articulating patient experience in the real world. Find out about our end-to-end service offering with case studies on our website. https://t.co/YwmMqLJdN6
Whether your research requires site-based recruitment or high accessibility with community recruitment via patient advocacy groups and social media, we can reach patients around the globe. Speak to us to learn more. https://t.co/klRiSD3C19
#RWE#realworldstudies
π Thrilled to announce that Vitaccess has joined the DEEP Measures ecosystem! π
DEEP is dedicated to building digital measures of health and Vitaccess is thrilled to bring our expertise in real-world evidence generation to support the validation of digital health measures.
And that's a wrap for #ISPOREurope 2024! You can read all of our publications from the conference here: https://t.co/3JiVZVmV2O Get in touch if you weren't able to catch up in person to discuss how we do patient-centered research differently.