Nicky

[Pearl Jam @PearlJam]

Today is #RareDiseaseDay

Rowan lives with Epidermolysis Bullosa (EB), a rare genetic disease that makes skin as fragile as a butterfly’s wings, but her courage isn’t rare, and neither is the global community of 400+ million people living with rare diseases.

Through @EBResearch, families, scientists, and supporters are pushing research forward, pioneering progress in EB and helping reshape what’s possible for rare diseases.

It’s not a matter of if.
It’s a matter of time.

🦋 Learn about EB and how you can help at https://t.co/vGEN2ZLU4K

[Nicky @vuurtoren66]

Must see ! #EB #eddievedder #Netflix

[Eddie Vedder @eddievedder]

Rare doesn’t mean few. It means millions of lives and a race against time. What starts with one disease becomes a story of music, community, and hope. Matter of Time follows the fight for a cure, beginning with Epidermolysis Bullosa.

Now on Netflix: https://t.co/5uIbNIc1XI

[Nicky @vuurtoren66]

Bruce Springsteen - Streets Of Minneapolis (Official Audio) https://t.co/zxWWAGO7Px via @YouTube

[Nicky @vuurtoren66]

Didn't see this coming. Shocked and in denial. Thanks MFC ! #PearlJam #mattcameron 📷Geoff Whitman

[Nicky @vuurtoren66]

Don't miss Episode 52 of #Immortal Weakling.
https://t.co/EmtkJ6uiT4 #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 51 of #Immortal Weakling.
https://t.co/3xdOmgjBLl #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 50 of #Immortal Weakling.
https://t.co/EyyiPvR3oc #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 49 of #Immortal Weakling.
https://t.co/kL7R3kaNnU #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 19 of #Silvyre.
https://t.co/eFrknSGL8a #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 47 of #Immortal Weakling.
https://t.co/DtEIwUeWKp #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 48 of #Immortal Weakling.
https://t.co/xp1W5o2qMv #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 18 of #Silvyre.
https://t.co/e8c0ikLFFp #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 46 of #Immortal Weakling.
https://t.co/pCBV6hofNH #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 17 of #Silvyre.
https://t.co/BVbdTGVftM #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 16 of #Silvyre.
https://t.co/O37zNMbEVx #WEBTOON

[StuBru @stubru]

Het is gebeurd. @PearlJam is met ‘Black’ weer de parel aan de tijdloze kroon! En nu genieten van de laatste avond van 2024. ✨

👉 Merci om te luisteren! Benieuwd naar de volledige lijst van De Tijdloze 100? Herbeluisteren kan op VRT MAX.

[Nicky @vuurtoren66]

@TonesOfMusic

[Nicky @vuurtoren66]

@historyrock_

[Nicky @vuurtoren66]

Don't miss Episode 45 of #Immortal Weakling.
https://t.co/YFp4ZVqNyd #WEBTOON

[Nicky @vuurtoren66]

Don't miss Episode 15 of #Silvyre.
https://t.co/2CNkdKIgJf #WEBTOON