North west Wales MND

Support group in North west wales for people living with Motor neurone disease. Facebook page @northwestwalesmnd

[MND Campaigns @mndcampaigns]

This June, we're holding an event in Parliament for #GlobalMNDAwarenessDay with the theme: 'The Hidden Realities of MND'. 📅

Invite your MP to attend using our email template below: https://t.co/VOXf7yclfn

[MND Campaigns @mndcampaigns]

Thanks to your support, we are close to reaching 20,000 signatures! #PrescribeLife #tofersen

Sign our petition to help people living with SOD1 #MND access a life-changing treatment 👇

https://t.co/IiCfNq25MM

[North west Wales MND @WestMnd]

Bore coffi☕
Coffee morning ☕
Raising money and awareness of #mnd 💙🧡 Efailnewydd rugby club #pwllheli
#northwales
@mndassoc
@MNDNEWales
@mndassocWALES

[Jo Cunnah @jocunnahMND]

Huge thank you to ALL our amazing volunteers during #volunteersweek we simply couldn’t do what we do without you- you are incredible🧡💙 @MNDNEWales @mndnorthwestwal @mndvolunteering @mndassoc @mndassocWALES

[North west Wales MND @WestMnd]

@DediKatieD @Lozpoedia @LeedsHospitals @LDShospcharity @AgamJung @IanFlattTDM @EspeyMandy @Jaynes__World @esther_wakeman @Paula_Gua @ClaireLang1 Fantastic i hope you enjoyed despite your sore feet!👏

[North west Wales MND @WestMnd]

@DediKatieD @Lozpoedia @LeedsHospitals @LDShospcharity @AgamJung @IanFlattTDM @EspeyMandy @Jaynes__World @esther_wakeman @Paula_Gua @ClaireLang1 I'm from Caergeiliog and living just over the bridge in llanrug just outside Caernarfon 🧡💙🏴󠁧󠁢󠁷󠁬󠁳󠁿xx

[North west Wales MND @WestMnd]

@DediKatieD @Lozpoedia @LeedsHospitals @LDShospcharity @AgamJung @IanFlattTDM @EspeyMandy @Jaynes__World @esther_wakeman @Paula_Gua @ClaireLang1 Wish I had known about your challenge earlier I would of met up I'm from Anglesey and living with MND 🧡💙xxx

[North west Wales MND @WestMnd]

Dydd Gŵyl Dewi Sant hapus ❤️���󠁧󠁢󠁷󠁬󠁳󠁿
Happy Saint David's Day❤️🏴󠁧󠁢󠁷󠁬󠁳󠁿

[MND Association @mndassoc]

It’s absolutely vital we get proven treatments to those with motor neurone disease as soon as possible.

To do this, today alongside @MNDScotland and @MNDoddie5, we've written letters to both regulators and ILTOO Pharma regarding the MIROCALS trial.

Read more information below.

[MND Campaigns @mndcampaigns]

Do you live in #Wales? 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Invite your Senedd Members to join @mndassocWALES as they discuss research & potential #MND treatments at the Senedd next month.

It's vital we have as many MSs attend as possible.
https://t.co/mwtovqIYJ5

[North west Wales MND @WestMnd]

Bydd ein grŵp cefnogi yn ail ddechrau yn @TyGolchi mis Mawrth 13eg am 2:30 croeso cynnes i bawb 💙🧡
#mnd #mndsupport #ynysmon #Gwynedd #conwy

[My Name'5 Doddie Foundation @MNDoddie5]

People living with MND don't have time to wait.

Today, alongside @mndassoc & @MNDScotland, we have written joint letters to both regulators and ILTOO pharma regarding the MIROCALS trial.

Full update 👇
https://t.co/hhlQsvr0Yr

[MND Association @mndassoc]

Thousands of families like Tom's need support that's right for them to navigate the challenges of MND.

This Christmas, the kindness of supporters like you will mean we can give more families the support they need through their MND journey.

Read more about our latest appeal.

[Jayne Halhead @Jaynes__World]

What Kevin did next...

1 Dec #Leeds
2 Dec #Cardiff
3 Dec #Birmingham
4 Dec #Edinburgh
5 Dec #Dublin
6 Dec #Brighton
7 Dec #London

"There are 100 reasons why we shouldn't go again, but there are 5000 reasons why we should!"

#7in7in7

More: https://t.co/G6oOJAveXo

[North west Wales MND @WestMnd]

Mis codi ymwybyddiaeth o glefyd motor niwron!
June is MND awareness month 💙🧡 #Mnd

[North west Wales MND @WestMnd]

Llongyfarchiadau Ffion - congratulations Ffion fantastic run for #Mnd 🧡💙 @mndassoc @mndcampaigns @mndassocWALES 🏴󠁧󠁢󠁷󠁬󠁳󠁿

[North west Wales MND @WestMnd]

Pob lwc Ffion 💙🧡
Good luck Ffion 💙🧡 Running for our local mnd support group here on #YnysMon #Gwynedd & #conwy #MND #londonmarathon2023 ✌️

[MND Association @mndassoc]

The MND Association is extremely concerned that the Department of Health and Social Care has halved its £500m investment into social care, which it committed to provide in 2021, to just £250m.

Read our response below.

[North west Wales MND @WestMnd]

💙🧡please RT to give my cousin Ffion a boost for her first ever marathon for #Mnd😀x

[MND Scotland @MNDScotland]

Fantastic to be part of the first executive meeting of the UK #MND Research Institute.

Our Director of Research, Dr Jane Haley, is working alongside others to take further steps towards accelerating #MND research across the country.

We are #United2EndMND 💙