Join us Monday!
We invite the MTM-CNM patient and family community to join @MTMCNMFamily and @willcuremtm on Monday July 13th to hear an update from Dr. Jim Dowling (The Hospital for Sick Children, Toronto).
Register: Online at https://t.co/VrTZbabros
We invite the MTM-CNM patient and family community to join @MTMCNMFamily and @willcuremtm on Monday July 13th to hear an update from Dr. Jim Dowling.
Register: Online at https://t.co/VrTZbabros
JOIN US MONDAY! We invite the MTM-CNM patient and family community to join
@MTMCNMFamily and @willcuremtm to hear an update from @Dynacure
Date: Monday June 29th, 2020
Time: 9:00-10:00 am PT/11:00-12:00 am CT/12:00-1:00 pm ET
Register: Online at https://t.co/AxDgvQOK2d
Patient advocacy groups, representing many families around the world with loved ones suffering from Myotubular Myopathy, have formally requested by letter to @AudentesTx , the company conducting clinical trials for the treatment of XLMTM, that the drug be made available...
Will-Cure is proud to announce another $8,000 has been awarded to Dr. Michael Lawlor and the Congenital Muscle Disease Tissue Repository. Dr. Lawlor and his team are continuing their important research of muscle diseases. https://t.co/N3HcTv4zwQ
Thank you to our amazing friends at Illinois Department of Transportation - District One!!! The special events committee held an amazing fundraiser for Will-Cure! There was even a dunk tank! Thank you IDOT! #EngineersRock#willcureMTM#Fight4William