Lisa Willig

Everyday, same thoughts....until CF and Syd are cured💜🌹💜
Kiddo #BEFathlete

[Lisa Willig @willig_lisa]

@senfettermanpa, as a constituent and advocate for the #cysticfibrosis community, I urge you to support providing at least $51.3 billion for the NIH in FY27 to help bring us closer to a cure. #CFadvocacy Please reach out to me to hear our person why for this request.

[Lisa Willig @willig_lisa]

@_j_a_k_e_d Can we please just give Graves to someone. No return needed!

[Lisa Willig @willig_lisa]

@StoneColdSid Absolutely! He saved us multiple times last year!

[Lisa Willig @willig_lisa]

Hard to believe her BEF days are almost over after 4 amazing years💜

[Boomer Esiason Foundation @cysticfibrosis]

CF Awareness Month Spotlight: Support at School 💙

Navigating college life is challenging enough—but for students living with cystic fibrosis, the pressure is even greater. Between managing treatments, staying on top of coursework, and keeping up with sports or extracurriculars, it can feel overwhelming.

That’s why a strong support system means everything.

It’s a powerful reminder that no one living with CF should have to face it alone. Whether it’s a coach who checks in after treatments, a roommate who understands your schedule, or teammates who rally around you—you deserve people in your corner.

Today our #BEFAthletes are shedding light on the power of their support systems at school💪

#CFAwarenessMonth #SupportSystem #BoomerEsiasonFoundation #LivingWithCF #CFatCollege #CFWarrior

[Lisa Willig @willig_lisa]

Follow along on a typical day for Syd in her final semester of college!

[Boomer Esiason Foundation @cysticfibrosis]

Follow along #BEFAthlete Sydney Willig on our Instagram today as she takes us through a typical day in her life as a student athlete at Geneva College! You don't want to miss Sydney's advice on how she manages her CF treatments, soccer training, and student teaching⚽️💊👩‍🏫

BEF IG: @boomeresiasonfoundation

[Lisa Willig @willig_lisa]

BEF has been connected to Syd for the last 4 years. Very thankful for the platform that they have provided her.

Join us in watching their story tomorrow night!💜

[E60 @E60]

Boomer Esiason didn't know how much time he'd have with his son Gunnar. So he made every second count.

"Second Wind: The Boomer and Gunnar Esiason Story."
Tuesday, Dec. 24 | 7p ET | @ESPN
Streaming after on @ESPNPlus

[Lisa Willig @willig_lisa]

@JoshYohe_PGH Can we please sit Graves?

[Boomer Esiason Foundation @cysticfibrosis]

#BEFAthlete, Sydney Willig celebrated her soccer Senior Night at Geneva College two nights ago. We are so proud of you Sydney! Read Sydney's reflection on her soccer career:

Senior night…. Wow where to begin. Growing up I was told I wouldn’t make it to my senior year of high school. Throughout high school there was so many hospitalizations and then being told I was too sick and would never play soccer again. Here I am now playing my last season of soccer as a college athlete with CF.

Reflecting back to getting to where I am today and wrapping up my college career is truly amazing. Not knowing from if I would even step onto the field, not knowing how my body would react, to being an athlete at such a high level was scary. Every day I am thankful for the chance to wake up and go push my body out on the field.

It is been anything but easy getting here and I couldn’t have done it without all my friends, teammates, past coaches, and family. They were always there to pick me up when I was down (sometimes literally). As I looked into the stands I was greeted by lots and lots of fat heads of me and a whole cheering section filled by old teammates, friends, doctors, coaches, and family and I truly couldn’t imagine it any other way.

As I wrap up this post I want to thank my teammates for making senior night so special. You all truly are the only reason I still show up to practice everyday and push myself. To my 10 other seniors you have seen me at my worst and at my best and have pushed me since day 1. I love you all forever and these last two weeks might be hard but we have overcome so much and will continue to.

Much love,
#26 💜 #befathlete

[Lisa Willig @willig_lisa]

Thank you for coming and attending!

[Kaitlyn Moe Rosensteel Scholarship Foundation @MoeRosensteel]

Congratulations to one of our first 2 scholarship winners @SydneyWillig on her senior day! What you do is bigger than soccer. As I always say, you inspire me and thank you for being an inspiration not only to me but so many others.

[Lisa Willig @willig_lisa]

Year 4 and couldn’t be prouder of this girl. Love ya 26💛⚽️🌪️🖤

[Boomer Esiason Foundation @cysticfibrosis]

Excited to introduce the final members of the 2024-2025 #BEFAthletes: Mallory, Lexi, Shane, Christian, Victoria, Griffin, and Sydney!

Stay tuned for more #BEFAthlete content throughout the next couple months. Follow all of our BEF athletes as they share their stories balancing their #CFCare with higher education while competing in collegiate level sports. ⚽️🥍 🏐

Get to learn more about the program and ALL of our athletes at the #linkinbio🏌️‍

[Lisa Willig @willig_lisa]

Syd has been fighting this microbacteria for 2 years. There are 3 antibiotics that she takes and 1 is shipped from Canada every 3 months.

We need to look at additional antibiotics to help people like Syd have addition options!

[Cystic Fibrosis Foundation @CF_Foundation]

For people with #cysticfibrosis, new, innovative #antibiotic options are critical for fighting difficult-to-treat infections so common in the disease. Passing the #PASTEUR Act can help propel that innovation forward. #CFAdvocacy

[Lisa Willig @willig_lisa]

@StoneColdSid We could add Graves onto that as a thank you gift.

[Lisa Willig @willig_lisa]

@StoneColdSid Can we add Graves as a gift bag?

[Lisa Willig @willig_lisa]

@_j_a_k_e_d I feel his concussion may last the rest of the year.

[Lisa Willig @willig_lisa]

Proud mom💜

[Boomer Esiason Foundation @cysticfibrosis]

#BEFAthlete @SydneyWillig is taking over our Instagram today. Follow along as she takes us through a day in her life as a college athlete with CF!

[Lisa Willig @willig_lisa]

@StoneColdSid Just call him pretty boy

[Lisa Willig @willig_lisa]

@StoneColdSid When is someone seriously going to call out 65 and 27 for simply being terrible? Chad is probably thankful that he isn’t covering for Graves and seeing Sully put those two together today is classic.

[Lisa Willig @willig_lisa]

@StoneColdSid He is seriously standing there and watching the play. For the millions he is making, can we fine him every time he forgets he is a defenseman? We could easily afford Jake with the money he would need to give us back!

[Lisa Willig @willig_lisa]

@_jacobcarroll @nhlpens That last PP, he was out with Sid, Jake and Letang and the had more chances and than they did all night.

[Lisa Willig @willig_lisa]

@StoneColdSid Demote 65 and 71