Matthew

[Vulval Cancer UK Awareness @VulvalCancerUK]

The Lichen Sclerosus Guide Won and so did I as patient contribution 🥳🥳🥳🥳🥳
https://t.co/6rvXgwpsw2
What a great team we are☺️

[Vulval Cancer UK Awareness @VulvalCancerUK]

We won 🥳
The Lichen Sclerosus Guude - https://t.co/6rvXgwq0lA

[Vulval Cancer UK Awareness @VulvalCancerUK]

My story
https://t.co/G2sRKolWNb

[Sophie Rees @drsophierees]

WE WON! The LS Guide won an award for 'Communicating effectively with patients and families' at the Picker Experience Network National Awards last week. Our fabulous patient representative Clare Baumhauer @VulvalCancerUK also won for her individual patient contribution.
#PEN25

[Vulval Cancer UK Awareness @VulvalCancerUK]

The Lichen Sclerosus guide https://t.co/6rvXgwpsw2

Check out all the resources we have .

Our resources page includes a poster , printable booklet , downloadable symptoms check list and treatment plan, plus 4 videos.

🔗 https://t.co/cjOxlO3aFZ

[Vulval Cancer UK Awareness @VulvalCancerUK]

If you’re up or near London Waterloo tomorrow at 1pm I’m talking at this event/exhibition. On all week , more information https://t.co/uAMJkQ6y4X

[Vulval Cancer UK Awareness @VulvalCancerUK]

The Vulval LS Guide https://t.co/6rvXgwpsw2

[Vulval Cancer UK Awareness @VulvalCancerUK]

Have an appointment coming up ?
Take these print outs with you so your doctor can fill out all the information you need
Often you forget what was said or forget to ask questions
PDF My Treatment - https://t.co/70TMOFmoro
PDF Check list - https://t.co/3Yh14ptIiq

[Vulval Cancer UK Awareness @VulvalCancerUK]

Today is Rare Disease Day https://t.co/B9lQR7TsbB

[Vulval Cancer UK Awareness @VulvalCancerUK]

Today is #RareDiseaseDay2025

[Vulval Cancer UK Awareness @VulvalCancerUK]

HPV Awareness Day 4th March 2025

[Vulval Cancer UK Awareness @VulvalCancerUK]

Great day yesterday at the BBC studios raising the much needed awareness for lichen sclerosus & vulval cancer and getting to meet these amazing women and Naga.

[Vulval Cancer UK Awareness @VulvalCancerUK]

Rare Disease Day 💜💚

[Vulval Cancer UK Awareness @VulvalCancerUK]

Listen now https://t.co/A2Dn7oveRI

Lichen Sclerosus
https://t.co/Y6jWT8VGgV

[Vulval Cancer UK Awareness @VulvalCancerUK]

World 🌎 Cancer Day
Cancer has turned my world upside down.

In April 2016 at just 43 my life changed for everyone and not just me.
I was diagnosed with stage 3 vulval cancer.
https://t.co/Leb3nnzXuq

[Vulval Cancer UK Awareness @VulvalCancerUK]

Looking for information about vulval cancer and vin ?
🔗 https://t.co/1bn6AmME6Q

[Vulval Cancer UK Awareness @VulvalCancerUK]

When you’re finally diagnosed after 38 years!
#LichenSclerosus

[Vulval Cancer UK Awareness @VulvalCancerUK]

Have you seen our new resource for patients and health professionals for those experiencing vulval symptoms or already been diagnosed?
Take a look and please do share the website especially health professionals to your colleagues and patients.
🔗 https://t.co/6rvXgwpsw2

[Vulval Cancer UK Awareness @VulvalCancerUK]

When after 25 sessions of pelvic radiotherapy you are then told the cancer has spread and you now need another 33 sessions of radiotherapy.
#vulvalcancer #radiotherapy

[Vulval Cancer UK Awareness @VulvalCancerUK]

I will be chatting all about vulval cancer and lichen sclerosus Tuesday 11th Feb 12 to 1pm on that time of the month show on BBC radio 5 live https://t.co/KBQcgOnshH