Beth Swanson

#writer #PT - chronic illness, health, parenting ❤️ mountains, summer, sun and Ivie 🐾 #hEDS 🦓 Healthcare is a human right 📧 [email protected]

[Beth Swanson @write4chocolate]

So many people have shared stories of denials from their health insurance company this week. Here’s ours.

#Health #healthcare #POTS #CCI #UHC #Cigna #BCBS #Aetna #UHCCEO #chronicillness

https://t.co/N8l7WmGud3

[Beth Swanson @write4chocolate]

Or your kid’s surgery.

[Tyler Austin Harper @Tyler_A_Harper]

You should not have to go viral in order to get your insurance company to pay for the cancer treatments your doctor says you need to survive. Glad this story had a happy ending. Many others do not.

[Beth Swanson @write4chocolate]

When even the #Hallmark channel is pointing out how damaging the #healthinsurance industry is, maybe it’s time to reconsider the business model.

#UHC #CEO #Cigna #healthcare
#HappyHowlidays
#FindingMrChristmas

[Beth Swanson @write4chocolate]

@TheCinesthetic Jamie Lee Curtis (also as an author)

[Beth Swanson @write4chocolate]

@JHWeissmann Jamie Lee Curtis. (Also an excellent kids author)

[Beth Swanson @write4chocolate]

Do you know what #Cigna told me when they (finally) approved Natalie’s surgery?

They “were just trying to protect her.”

From what? School? Friends? Being alive?

Killing people is wrong. Even if you do it with paperwork and a smile.

[Nathan J Robinson @NathanJRobinson]

The @nytimes lets the CEO of UnitedHealth write a straight-up corporate propaganda / PR piece defending their company, falsely claiming they believe in fixing the healthcare system. I assume they'll let Mangione write a rebuttal, or else they don't believe in viewpoint diversity.

[Beth Swanson @write4chocolate]

Her surgery is approved!!!

We are excited but exhausted.

It shouldn’t take a parent who can write and a kid (young woman) who is willing to share her medical history with the world just to access care.

And also, HER SURGERY IS APPROVED!! 🩷

Pics of Natalie over the years.

[Beth Swanson @write4chocolate]

@BluesteinLinda It really was. Several of you came together and provided info. I used it to educate our local doctors (and schools and other parents) on her condition. Eventually got to excellent specialized care but really appreciate the help, and the docs willing to learn to help Natalie.

[Beth Swanson @write4chocolate]

@DrEReinhold @TheEDSociety @BluesteinLinda @stcohen112 @DocZing @EDSawareness1 @CortDoesScience You posted some resources for me a few years ago when we were still having a hard time getting anyone to take her seriously, when the genetics dept told us POTS and fatigue and dizziness “weren’t really part of EDS. Just joint pain.” Have passed those resources on many times. 😃

[Beth Swanson @write4chocolate]

(Going to try this two ways here - link in comments.)

Like so many others, here’s our family’s story about another insurance company denial.

And spent last night at the ER with Natalie. Again.

#Health #healthcare #POTS #CCI #hEDS #UHCCEO #CIGNA #Aetna #BCBS

[Beth Swanson @write4chocolate]

Guess they haven’t learned anything.

Insurance is not an indispensable part of health care and executives are certainly not pillars of leadership or whatever the fuck that line was.

And not a word about employee safety. Or concern. Or care. JFC.

[Beth Swanson @write4chocolate]

@anewdaysdawn Omg. I’m so sorry. That’s awful.

[Beth Swanson @write4chocolate]

Oops. Broke the thread. Continues on my page. (I’m good at social media? Wait.)

[Beth Swanson @write4chocolate]

Good morning everyone! I’m having a little trouble keeping up with my inbox and mentions. Here’s a glimpse into Natalie’s world - “graduation” + first visit to the surgeon + family - and then will share our plans in the thread.

[Beth Swanson @write4chocolate]

To answer some questions:

Is the case manager really on our side?

I sure hope so. I understand people skepticism, but I want to live in a world where we look out for each other. So for now, I’ll say yes.

[Beth Swanson @write4chocolate]

This!!!!! Hoping Natalie’s story leads to change and better access and protections for everyone!

#healthcare #HealthInsurance #POTS #CCI #hEDS #Cigna - are y’all listening yet???

[Alissa Zingman MD MPH - ZebraMD @DocZing]

5/5 This is fixable

1. Insurance companies are essentially organized crime - pay for protection, price escalates, protection decreases, repeat. Lose a battle, may wind up dead. #REGULATE @SenateDems

2. Physician education about #EDS, #CCI #AAI #POTS #MCAS,etc.

Pretty Simple

[Beth Swanson @write4chocolate]

Thank you for all the support and care. Here’s her story once more, just in case. Sure hope the #HealthInsurance #CEOs ar #cigna #BCBS #UHC and others are reading. #CCI #POTS

And again, @RepKimSchrier @PattyMurray @SenatorCantwell

Wanna make a law??

https://t.co/N8l7WmGud3

[Beth Swanson @write4chocolate]

And to the many, many people in my inbox and across platforms on more restrictive plans who are desperate for care, I am so, so sorry. American #HealthInsurance needs to do better. I sure hope the #healthcare #CEOs, administrators and politicians are listening to all of us.