prideofmerseyside1892

@ynwairmc

Mr.Children F&M25年目/Liverpool FC/OLSCJ:No384/観戦歴:Anfield,Old trafford,st James park,Etihad stadium,Elland road, Camp nou,Delle alpi/大分トリニータ/Jeep JL Wrangler/

大分大分市

Joined April 2010

305 Following

185 Followers

1.3K Posts

prideofmerseyside1892 @ynwairmc

7 months ago

社長、迅速な対応ありがとうございます。近所に住んでいるので先ほど夜ランで前を通ってみました。キレイに整頓されていて気持ちが良いです‼️ 明日の開幕戦、極寒のようですが必ず勝ちましょう🐢🐢🐢

河野貴輝

@tkpkawano

7 months ago

ご指摘ありがとうございます

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prideofmerseyside1892 @ynwairmc

7 months ago

@tkpkawano 社長、いつも大分、トリニータのために尽力いただきありがとうございます。オープンから2ヶ月経ちますが、毎朝ホテル前を通勤で通りますが、個人的に配線の見栄えがどうしても気になります😔

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prideofmerseyside1892 @ynwairmc

almost 3 years ago

@LivaxSuwa13

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prideofmerseyside1892 @ynwairmc

over 3 years ago

@itsDanOz ナビスコ優勝、経営難、J3降格紆余曲折色々あります地元大分トリニータ🔵🟡🐢

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Who to follow

YM@YNWA

@edoYNWA

liverpool大好きです！ベイスターズのこともつぶやきます！一口馬主やってます https://t.co/w4HeRalCUg

ynwairmc retweeted

over 3 years ago

Hello Elon San @elonmusk Could you please take a look at the attached tweet and help them spread the word? Basically, there son has a genetic disorder called junctional epidermolysis bullosa. Since it’s such a rare disease, they can’t find any valid treatment in Japan and their son’s life is in great danger. If you take a look at the statistics of the attached tweet, you can see that almost all the Japanese Twitter users has seen it, but we want this tweet to go world wide to raise the probability of finding the right treatment. Please please help them. Below is the translation of the attached tweet. ——————————————— Today's video is a video of a request to all of you. Last year we found out that our first son, born to us, has a genetic disorder called junctional epidermolysis bullosa. Epidermolysis Bullosa is a disease that has many different forms, ranging in severity from mild to fatal. My son's form is the most severe form. We also spoke to people who are considered epidermolysis bullosa specialists, Frankly speaking, the number of patients with epidermolysis bullosa is very small, and depending on the literature, death often occurs within the first year of life, so we are not sure if this is the case. Even the specialists answered that they do not know what they can do other than symptomatic treatment. There are currently no active treatments or clinical trials in Japan, and there is almost no chance of success. We contacted overseas research institutes and medical institutions. We also tried a treatment that was probably the first of its kind in Japan, but it was not effective. However, if we give up now, our son will surely die in the not-so-distant future. However, we do not have the option to just do nothing and face that day. We have no choice but to do nothing and face that day. That's why I made this video to ask for your help. We would like you to translate this video and our message into various languages and spread it on various social networking sites. Also, if you are a researcher who has seen these posts, or have information to share, please contact us at [email protected]

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