Michael Sieverts

Semi-retired gov exec. Covid long hauler. DC native. Bluesky: @yogafogie

[Michael Sieverts @yogafogie]

Happy to help a group been an beyond helpful to me. #LongCovid #BodyPolitic
https://t.co/MuKVxx14od

[Michael Sieverts @yogafogie]

@WIRED @AlanLevinovitz If talk therapy worked for these illnesses we'd know by now. Please stop with these worthless distractions.

[Jon Douglas @atranscendedman]

Senator Young to RFK Jr. on Long COVID.

More trials with real treatments.
ARPA-H in the mix.
Pharma finally picking up the phone.

[Long COVID Campaign @LCCampaign]

FREE WASHINGTON DC EVENT SATURDAY JULY 19: Are you living with #LongCOVID, a loved one, caretaker or healthcare provider? Join celebrated cellist & Long COVID patient-advocate @joshua_cello's community @kencen performance of his "IMMUNITY", register here: https://t.co/WaZ0uMla6U

[Michael Sieverts @yogafogie]

From the print edition of today's @washingtonpost . Thank you @KarpLindsay for sharing your experience. It will be helpful to all of in this invisible realm.

[Lindsay Karp @KarpLindsay]

This is for everyone who was ever denied support because their disability cannot be seen.

Thank you @washingtonpost for helping create awareness and advocate for change—and @InvDisabilities and @ImTiffanyYu for sharing expertise!

https://t.co/Nm41xMp9CV

[Solve ME/CFS Initiative @PlzSolveCFS]

ICYMI: Solve CEO Emily Taylor spoke at the #MIllionsMissing #DisabilitySOS event hosted by @meactnet in DC today. She reflected on her journey as a caregiver & announced our #MECFS Catalyst Award funding for a study by Dr. Akiko Iwasaki.
https://t.co/mpGuZQLAUt
#WorldMEDay

[Emily Rubenstein @emrubenstein]

Meaningful time w fellow #LongCovid advocates at @SenatorCollins & @PattyMurray's bipartisan biomedical research hearing. Heartening to hear @AppropsGOP & @SenateApprops's questions & bipartisan support for biomedical research!

@meighanstone @doc4care @BridTweets38 @yogafogie

[Patient-Led Research Collaborative @patientled]

"...the very nature of Long COVID and other infection-associated chronic conditions (IACCs) – complex, multi-system conditions that present themselves in myriad ways – testifies to the need for a research enterprise of tremendous breadth and depth." 2/

[Patient-Led Research Collaborative @patientled]

PLRC joined other research organizations to provide statements for today's Senate Appropriations hearing, Biomedical Research: Keeping America’s Edge in Innovation.

Our statement is under US Congress section here: https://t.co/gc0z3ZJUSL.

Video: https://t.co/wEtdPdYUsP 1/

[Long COVID Campaign @LCCampaign]

Say what you will about Hill currently, but these two women leaders—@AppropsGOP Chair @SenatorCollins @SenateApprops Vice Chair @PattyMurray—show what it looks like to work in excellence, across the aisle, for ALL Americans. Congress would be well-served to take their example.

[Michael Sieverts @yogafogie]

@bruce_y_lee @PeterHotez -- I'm concerned the article on the cost of #LongCovid is a significant underestimate, perhaps by factor of 100. Estimate for "current cases" of LC as 136,739 makes no sense, as does statement that "symptoms last 1 year."

[Dysautonomia Intl. @Dysautonomia]

Did your existing chronic health issues get worse after a COVID infection, or did you develop new onset #LongCOVID? Tune in to our free webinar on January 23rd to learn how you can get involved in the CURE ID study to help find more effective treatments! https://t.co/jUF4qkHI7Y

[Michael Sieverts @yogafogie]

@nflnetwork @ScottHanson @NFL Daniels to Brown Hail Mary! #NFLRedZone

[betsy ladyzhets 📊 @betsyladyzhets]

Today @thesicktimes: I covered what the incoming Trump administration may mean for #LongCovid and related disease research and advocacy. https://t.co/UXVakaqYXK (obsessed with the featured image by @mileswgriffis!)

[CURE ID @id_cure]

While originally we thought we would need to reach 1000 cases before doing an interim analysis, the data you all have provided has been so rich, we think it’s worth starting the analyses at 500 cases. @ahandvanish @meighanstone @PhillyPhile215 @CHRomatowski @yogafogie

[CURE ID @id_cure]

@meighanstone @doctor_zeest @yogafogie

[Michael Sieverts @yogafogie]

@USPSHelp Why does a packaged destined for Arlington VA go this route: Philadelphia to Merrifield VA to Dulles then back to Merrifield and back again to Dulles AND THEN TO QUEENS NY!

[Michael Sieverts @yogafogie]

@stlouisfed Re: the increase in cognitive-related disability, did you consider #LongCovid as a possible driver? See: https://t.co/29us0W9YXX

[Billy Hanlon @bhanlon15]

TIME 100 Health: 'Avindra Nath: Demystifying exhaustion'

'..interest yielded a historic study—perhaps the most extensive ever conducted—on a long-ignored and mysterious condition: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)'

https://t.co/GBg5eyxeTI

[CURE ID @id_cure]

If you would ever like assistance entering your case, a member of the NCATS/NIH team would be happy to assist you with updating or completing your case information. You can reach them at [email protected]

@meighanstone @yogafogie @LisaAMcCorkell @dsethlewis