youdownwithldp

almost 5 years ago

I said it. I meant it. I mean it. Here we go. @bsw5020 @sabrevaya @iamalsorg

almost 5 years ago

When @sabrevaya and I first met Laura, we asked her what she wanted most out of her career. Her answer without missing a beat: “I want to have changed the world.” So, yeah, I am f’ing stoked to have her as @iamalsorg’s new CEO. Here’s to changing the world.

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over 4 years ago

@boaflouncer You will do great!! As if the Flouncer could be anything but ☺️

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over 4 years ago

@sabrevaya ❤️

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Neurologist, Part time volleyball and softball enthusiast. Opinions shared here are my own personal views.

over 4 years ago

@boaflouncer Phoebe wants to know if there is room for one more!

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Who to follow

Jinsy Andrews, MD

@JinsyMd

Christa Thompson

@ThompsonStratRI

RI Political Strategist. Won '26 w/@LGSabinaMatos + @RIDemParty (Coordinated Camp). Ex - @Rep_Magaziner District Dir., ALS Advocate @_forloveandlife. Boy mom.

Doug Butchart

@butchart_doug

My wife has ALS. She was diagnosed in November of 2017. We are trying to stay informed about the disease and live our life the best way we can. Enjoy living.

over 4 years ago

@mpabull @iamalsorg This is beautiful. Thank you for sharing ❤️

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over 4 years ago

More love. More time for love. Help us do the work to make this possible for everyone living with ALS.

over 4 years ago

It’s Friday, I’m in love.

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over 4 years ago

Proud of our team and community for the work informing today’s submission to NINDS with our input on priorities to shape NINDS’s ALS research. May we all continue both to challenge and to support each other ever to push forward in being at our best to beat ALS.

I AM ALS @iamalsorg

over 4 years ago

Today we submitted a set of community-centered ALS research priorities to the @NINDSnews Request for Information. We commend NINDS for engaging the ALS community early in the process and urge them to continue collaborating with those most impacted by ALS. https://t.co/gYmby2ZAYE

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over 4 years ago

@kingsmnd @kelsieswrites @sabrevaya @nadia_sethi @alsadvocacy @sandrawmarlowe @Jaynes__World @Mayuri_Saxena @sandymorris333 @AndreaBackman05 @DrOzdinler @Jeanc9orf72 @sunnystrongals @PatriciaMGSuaga So honored and grateful to be counted — and working to make it count — with the incredible warriors here.

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almost 5 years ago

@oligogirl @collinrwj @roon_mom Congratulations!!! So well earned. Hope you celebrate with lots of chocolate ☺️

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almost 5 years ago

@ScottFightsALS @iamalsorg Let’s hear it for more love and the incredible people who inspire it ❤️ Thank you, Scott, and way to go!!

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almost 5 years ago

@evankaosmak I am so very sorry to read of your mom’s passing. Thank you for sharing these words about her life and a view into what made her so special and so loved. I don’t know that anything can truly lessen this pain, but sending support and wishes for comfort your way.

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almost 5 years ago

@MarkSooHoo @bsw5020 @sabrevaya @iamalsorg @Nationals @LG4Day @Cubs O’s fan living in the heart of New York here! Here’s to standing by our teams and the heroes who inspire us to do big things 👊 We’ll keep you posted on @LG4Day !

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almost 5 years ago

I said it. I meant it. I mean it. Here we go. @bsw5020 @sabrevaya @iamalsorg

almost 5 years ago

When @sabrevaya and I first met Laura, we asked her what she wanted most out of her career. Her answer without missing a beat: “I want to have changed the world.” So, yeah, I am f’ing stoked to have her as @iamalsorg’s new CEO. Here’s to changing the world.

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almost 5 years ago

Feeling all the feelings and so very grateful to be here with you, for you @iamalsorg community. Thank you for the incredible town hall welcome tonight. You inspire me to be the very best I can be, and that is what we all need to do as we come together to end ALS.

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almost 5 years ago

@ALSProbSolvers Thank you for the warm welcome - I’m so glad to be here and can’t wait for what we will accomplish for the ALS community together!

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almost 5 years ago

@ClareDurrett 💔 thinking of you and her family. “Her true strength was her ability to care for each and every person she ever met.” Thank you for sharing this view to her story and the beautiful but far, far too short life she made.

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almost 5 years ago

@Team_Thriving @iamalsorg @farmstronginfo @cese_viti I am so sorry for the loss of your Uncle Wayne, Pat. We hold you in our hearts and send love and support your way. Our deep gratitude to you all for supporting I AM ALS in his memory. We will do our very best to honor him with our work.

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almost 5 years ago

@MarkSooHoo @bsw5020 @sabrevaya @iamalsorg 👊 here and ready for it! Nats fan I see? Game on for Lou Gehrig Day!

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youdownwithldp retweeted

Mike Quigley

@RepMikeQuigley

almost 5 years ago

Exactly one month ago, Act for ALS was signed by President Biden. We can finally begin the work of finding a cure and saving lives. Retweet this if you are ready to #EndALS

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almost 5 years ago

Here’s to the incredible ALS community and three years of making the impossible possible with @iamalsorg We’re in it to make more good news — great news — a reality for everyone with ALS.

almost 5 years ago

Woke up to my wife showing me this screenshot. The amazing story from @samstein in @politico is back on @AppleNews as the “good news”. I can’t think of a better way to mark @iamalsorg 3rd birthday and what the incredible ALS community has accomplished together. Dream big y’all.

bsw5020's tweet photo. Woke up to my wife showing me this screenshot. The amazing story from @samstein in @politico is back on @AppleNews as the “good news”. I can’t think of a better way to mark @iamalsorg 3rd birthday and what the incredible ALS community has accomplished together.

Dream big y’all. https://t.co/xQXVdG2rIa

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