Hailey🦋

forever a badlands kid (she/her 27)

[Hailey🦋 @younggodhailey]

my Halsey vinyl collection, ready for the new additions ♥️

[Hailey🦋 @younggodhailey]

@ThePOTSPostman This is actually crazy because I have tmj and it hurts really bad to open my mouth all the way but I can fit 4 and spread all my fingers out to the point where they are not touching… but my mouth doesn’t even look like it’s open that wide

[Hailey🦋 @younggodhailey]

@ThePOTSPostman Yes! I dislocated one side in my sleep weeks ago and it’s still hard to chew and talk. I’ve always had issues with it on and off.

[Hailey🦋 @younggodhailey]

made it to the day I’m 28 years old or something like that

[Hailey🦋 @younggodhailey]

I also don’t know how I got so lucky or if surgeons are significantly different but my ortho surgeon and GI surgeon are literally two of the nicest most caring people I’ve ever met

[Hailey🦋 @younggodhailey]

I finally caved and went to a hip surgeon this morning for my left hip and she’s like “well I can see you have a little dysplasia on the right” … wait hold up we aren’t here for the right side let’s not find more issues than I already have

[Hailey🦋 @younggodhailey]

This morning is now passed 72 hours without electricity… temperatures have been in the single digits the last two nights. Being hopeful we get power back today.

[Hailey🦋 @younggodhailey]

Out of my medical problems refractory idiopathic gastroparesis is a nightmare. No one knows how to treat it and no one wants to even try. It impacts every second of my life.

[The guy with 1 T @Theguywith1t]

You better hope to god your medical problem is easily diagnosed with a simple test because otherwise no one will know what to do with you. Just a bunch of shoulder shrugging and throwing spaghetti at a wall

[Cho Dirt @toricantstfu]

“Over-hyped”

[Hailey🦋 @younggodhailey]

Super thankful to all of our emergency, medical, and lineman for working so hard in these weather conditions ♥️

Sunday morning 360,000 homes in TN didn’t have electricity in freezing temps, this morning we are at 175,000

Myself and all of my family still don’t

[Hailey🦋 @younggodhailey]

I am now on day 4 of being stuck at the hospital due to the ice storm… I can officially say the only thing I hate more than being a patient in the hospital is being stuck here with no way out

[Hailey🦋 @younggodhailey]

I’ve been stuck at the hospital I work at since Friday. It’s definitely a dystopian feeling to be stuck somewhere with no way to leave and having to continue working with barely any sleep or food. There’s genuinely no end in sight with the cold temperatures and ice.

[Hailey🦋 @younggodhailey]

I’ve been stuck at the hospital I work at since Friday. It’s definitely a dystopian feeling to be stuck somewhere with no way to leave and having to continue working with barely any sleep or food. There’s genuinely no end in sight with the cold temperatures and ice.

[Hailey🦋 @younggodhailey]

Telling myself over and over and over again my medications don’t mean I’m giving up… having to get a J tube and a central line doesn’t mean I didn’t try hard enough. My body is failing and there’s nothing more I can do but accept medical help.

[Nisha Patel, MD MS, Dipl of ABOM, CCMS @DrPlantel]

Here’s something I wish more people understood about their health:

Taking medication to treat a medical condition is not a moral failure.

Somewhere along the way, we decided that needing medication means you “didn’t try hard enough.” That you should suffer through lifestyle changes indefinitely before you’re allowed to get help. That belief is not only wrong, it’s harmful.

Even in a so called perfect world with unlimited time, money, and access, people would still get sick. Biology doesn’t wait for perfect circumstances. Disease doesn’t pause while you optimize your morning routine.

Medications are not the easy way out. They are tools, tools that help manage disease now, while you build healthier habits within the very real constraints of your life. Waiting for the “right time” can mean letting conditions worsen unnecessarily.

This isn’t lifestyle vs. medication.
It’s lifestyle and medication.

And shaming people for using evidence-based treatment helps no one, except disease.

[Hailey🦋 @younggodhailey]

I have major fomo because I was supposed to be at both Detroit shows but I had to listen to my body for once because I’m not doing well. However I’m so happy for all my mutuals that got to go!! Stay warm and enjoy night 2 for me!

[Hailey🦋 @younggodhailey]

It’s the flu, I tested positive and this is the sickest I’ve been from a virus in a long time

[Laurie Kilmartin @anylaurie16]

Are all the new “terrible flu” cases actually COVID? Do people test anymore or just assume its a flu?

[Hailey🦋 @younggodhailey]

@ThePOTSPostman my sister and I both can and we have EDS

[Hailey🦋 @younggodhailey]

I have the flu (yes it’s as bad as everyone says) and everytime I get a virus my pots and gastroparesis gets worse so I’m not looking forward to the after effects

[Hailey🦋 @younggodhailey]

I. am. so. tired. of. having. gastroparesis.

[Hailey🦋 @younggodhailey]

@ThePOTSPostman Genetic testing was required for my hEDS diagnosis since ruling out the other types is one of the boxes on the diagnostic criteria. I got my genetic testing done at Vanderbilt through a research program and they continue to update my genetic profile with new research!

[Hailey🦋 @younggodhailey]

@sweetIikeh0ney_ Literally same. I was there and when she stepped on stage my mouth hit the floor.