Zed

surviving pssd and long covid | DMs open

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Walking is exertion. Singing is exertion. Living is exertion. Exertion intolerance is anti-life

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@Yrrepmot I wish these communities could recognize the common enemy of medical incompetence and psychologizing of disease

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@Yrrepmot As someone with both iatrogenic injury and LC/ME it's a shame to see this idea that one HAS to be worse than the other. I understand why people say it, but people with ME, akathisia, anhedonia, etc. all have a claim to suffering

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@WIRED What a waste of fucking air space

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Depression/Anxiety AND chronic illness. It's not just one or the other, and labelling so many health problems "anxiety" is destroying credibility

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Some medical advocacy groups and patient communities do more harm than good. It's a cruel irony

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@tink_ina All of these scam trials and mind-body grifters deserve to be blacklisted. Over a billion dollars of research funding in the US, and it got us where? Not to mention the "health coaches" for LC/ME

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@c3vvno 💯I hate this idea that you can "ride out" torture for weeks, months, years

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@JoeySantoro2 @6pm I would ask, what is the most important thing that iatrogenic injury took away from you?

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chronic illness is not cute, cozy, or inspiring

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@injuredpingu I hate this false dichotomy she states with "life saving" and "rare" side effects. I only took antidepressants for IBS and I still had PSSD within a few doses.

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@missdaytona333 This is very touching. May you be free of these troubles soon

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@JackHadfield14 Timelines seem heavily compressed here, are you sure about that?

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@Race2Extinct @CrowleyClark1 racing to extinction are we?

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@NicoleCorrado1 Yes, non psych drugs included!

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Either I rest and ruminate, or exert and get PEM

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@_VFK_DAA 💯Treatment implies restoration and healing. Pacing is an attempt to slow down illness progression, and it doesn't always work out either

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@NeleHelena I agree, there needs to be a better medium. Twitter works as a sort of blog, but it's drenched in drama and shitty algorithms

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What did all of this research money achieve really?

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@Yrrepmot I thought some would wise up after he made an extensive thread calling out all the "worst" of the the Long Covid community in his eyes. Just plain toxicity

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myalgic encephalomyelitis. worse than any name can describe #MEawareness