Zoe Rothblatt

[CreakyJoints.org @CreakyJoints]

Lou Tharp, Executive Director of @GHLForg, testified in opposition to Maryland’s SB0357, which grants the Prescription Drug Affordability Board the authority to set upper payment limits. He warned that this measure could force patients to switch treatments, potentially leading to serious health consequences. Tharp also emphasized that cost savings must directly benefit patients, stating, “Without clear provisions requiring insurers to pass savings on, commercially insured patients will continue to pay the same out-of-pocket costs without seeing any reductions.”

[CreakyJoints.org @CreakyJoints]

Last week our Chief of Legal & Policy Affairs @StevenNewmark gave testimony to the New Hampshire State Senate. This week he's at the United Nations speaking to the Committee on NGOs. From state to international policies, we know how lucky we are to be able to spend each day advocating on behalf of patients.
#PatientAdvocacy

[CreakyJoints.org @CreakyJoints]

Everyone deserves compassionate and affordable care. That’s why we are supporting the Centers for Medicare and Medicaid Services (CMS) Proposed Rule to expand coverage for obesity medications under Medicare Part D and state Medicaid programs.
#CMS #ObesityCare #ObesityPolicy

[CreakyJoints.org @CreakyJoints]

The Centers for Medicare and Medicaid Services (CMS) recently introduced a Proposed Rule to expand coverage for obesity medications under Medicare Part D and state Medicaid programs. This is a critical step in acknowledging obesity as a chronic disease and improving access to care.
#CMS #ObesityCare #ObesityPolicy

[CreakyJoints.org @CreakyJoints]

Finding a care team that truly understands obesity as a chronic disease can be life-changing 💙
That’s why we’re supporting the Centers for Medicare and Medicaid Services (CMS) Proposed Rule to expand coverage for obesity medications under Medicare Part D and state Medicaid programs.
#CMS #ObesityCare #ObesityPolicy

[CreakyJoints.org @CreakyJoints]

We support this rule! Make your voice heard by emailing us at [email protected].
#CMS #ObesityCare #ObesityPolicy

[CreakyJoints.org @CreakyJoints]

As 2025 kicks off, @GHLForg continues its work around the states to lower costs - and ensure treatment access - for patients. Our Chief Legal & Policy Officer, @StevenNewmark testified to the Senate Health & Human Services Committee of the New Hampshire legislature this week in support of provisions of SB17 to make sure insurers include ALL payments by, or on behalf of, patients count towards deductibles, thus allowing patients to reach their annual deductible thresholds sooner and making therapies more affordable.

#PatientAdvocacy #HealthcareAccess
#LowerDrugCosts
#AffordableCare #HealthPolicy #HealthcareForAll

[CreakyJoints.org @CreakyJoints]

Let’s work together to ensure that obesity care becomes a priority for all. Your voice matters! #CMS #ObesityCare #ObesityPolicy

[Eileen Davidson - Rheumatoid Arthritis Advocate @chroniceileen]

"When I push too hard, the symptoms can intensify. It’s like my body’s alarm system going off, urging me to stop." @CreakyJoints

https://t.co/MKdnGHbZKR

[CreakyJoints.org @CreakyJoints]

Learn how vaccine policies safeguard public health, protect those with chronic illnesses, and why patient advocacy is essential for driving meaningful change.
https://t.co/0vWs4QWx2Z
#Vaccines #HealthAdvocacy #PublicHealth

[CreakyJoints.org @CreakyJoints]

Let's come together as a community this #CCAwarenessWeek and drop your best advice in the comments!
#IBDVisible #CronhnsAndColitisAwarenessWeek

[CreakyJoints.org @CreakyJoints]

This Crohn’s and Colitis Awareness Week, we’re talking about a complication known as fistula. We know talking about fistula symptoms can feel awkward, so we created tips and a guide to help you start the conversation and get the care you need.
Head over to the link below to get our guide to understanding and managing fistula.
https://t.co/Shv98ET2KS
#IBDVisible #CCAwarenessWeek

[CreakyJoints.org @CreakyJoints]

“You want to expand your voice as much as possible. We like to say at @GHLForg that advocacy starts with you. You have got to be your own advocate.”
@StevenNewmark
#AdvocacyInAction

[CreakyJoints.org @CreakyJoints]

This #CCAwarenessWeek, @keyla_ire highlights the misconceptions people face, the hidden struggles of living with IBD, and the individuality of every patient's journey.

[CreakyJoints.org @CreakyJoints]

“Advocating for yourself is practicing advocating for others” Rachael Eckles, lawyer and bioethicist suggests starting to advocate by using your voice to speak up for what you need.
#AdvocacyInAction

[CreakyJoints.org @CreakyJoints]

Live from Advocacy in Action: @NitikaChopra on advocating for yourself and shifting culture.
#AdvocacyInAction

[CreakyJoints.org @CreakyJoints]

🎉 100 essays! @ChronicEileen has reached an incredible milestone with https://t.co/auDGHOYF97, and we couldn’t be more grateful.

Eileen, your words have inspired countless patients and amplified the patient voice in ways that truly matter. Thank you for tackling the tough topics, sharing your heart, and being a powerful advocate. 💜

Read her latest: https://t.co/obsh6Y48ks

#RA #CreakyJoints #ACR24

[CreakyJoints.org @CreakyJoints]

#ACR24 study looked at giant cell arteritis (GCA) in Medicare fee-for-service and found that prevalence: ⬆️Rises with age (highest in 85+)
⬆️Is ~2x higher in females
⬆️Is highest in White persons
⬇️Is lowest in Asian persons
@abbVie @DrPeterMerkel
https://t.co/HKywDPQkPO

[CreakyJoints.org @CreakyJoints]

Time flies when you're diving into the social determinants of health and their impact on patient outcomes! 🧑‍⚕️ Dr. Sharon Dowell shares her passion for rheumatology, building patient relationships, and seeing life through many lenses at #ACR24. 🌟 Watch now!

[CreakyJoints.org @CreakyJoints]

Are you satisfied with your rheumatoid arthritis control? 🤔 A new #ACR24 study reveals:
🩺 73% of 26,377 patients are satisfied, but 57.5% of those not 'very satisfied' want med changes.
🩺 Top concerns: fear new meds won’t work & thinking current meds are 'good enough.'
@venkyshilpa1 @GHLF_Kelly
https://t.co/IWX2sCWm7L