Prader-Willi Syndrome occurs when a baby is born and a piece of their Chromosome 15 is imperfect. People living with PWS are more than a syndrome. They may inherit their mothers nose, or their fathers sense of humour but they will be themselves foremost
https://t.co/LgTqM5BJQD
Your donation will support the development of an evidence- based state-wide care program for children with #PWS led by Monash University for implementation at The Royal Children's Hospital and Melbourne and Monash Children's Hospital
Find out more here
https://t.co/WZvorForTM
For over 40 years, the #PraderWilliSyndrome Association of Victoria (PWSA VIC) has been a lifeline for families living with #PWS. By donating you will help the PWSA VIC continue to provide vital on the ground support & services needed by the PWS Community
https://t.co/LgTqM5BJQD
Parents, you are not alone if your child with PWS struggles with temper tantrums. These study results explain the triggers and best management techniques for these difficult behaviors. Let us know what works for you! #praderwilli https://t.co/SOKj6KeMTj
Show your support for people living with Prader-Willi Syndrome and Donate today!
https://t.co/LgTqM5BJQD
This month we aim to raise awareness and celebrate all our PWS community - no matter what stage they are at in life!
#pws#praderwillisyndrome#pwsavic#pwssupport
Due to the low muscle tone in people with #pws, the entire gastrointestinal (GI) system is compromised. It takes longer for food to pass through their system and can lead to severe complications.
Here’s how you can show your support
https://t.co/pls1457t5W
#pws#15for15challenge
Didn't make it to the 2019 FPWR Conference? No problem! Watch 14 of our most popular conference presentations on YouTube! #praderwilli https://t.co/GLWq8sLr3b
People with #PWS of all ages face lifelong challenges in dental health with decreased, thick and sticky saliva that adheres to teeth and harbors bacteria that can cause decay and periodontal disease
This month we're raising awareness and celebrate all our PWS community
#15for15
Have you signed up to the Challenge? It's easy to help people living with Prader-Willi Syndrome! Together we can create the change they need
This month we aim to raise awareness and celebrate all our PWS community
https://t.co/pls1457t5W
#pws#praderwillisyndrome#pwsvic
Only one day left to sign up to the Challenge!
It's easy to help people living with Prader-Willi Syndrome! Together we can create the change they need
This month we aim to raise awareness and celebrate all our PWS community
https://t.co/pls145p3Xu
#pws#praderwillisyndrome
We find those who are challenged the most often shine the brightest – and we couldn’t agree more that our Pader-Willi Syndrome community shines bright!
Join our #15for15challenge this month and raise awareness for our PWS stars.
#pws#praderwillisyndrome#15for15challenge
I’ll be doing my #15for15 challenge of 100 burpees, 100 sit-ups and push-ups In aid of #PWS at 3.35pm by the @MonashInfotech exhibit next coffee break. Come help me raise money! @ICSEconf#icse19 https://t.co/gzyV9usJ16