Darren Rose

Time to kick some #ALS!! #FUALS #ALSFindACureNow #EndALS

[Darren Rose @AAADRose]

Tell BrainStorm: The ALS Community Deserves Transparency https://t.co/AHJvi3qVsM

[Darren Rose @AAADRose]

#Swing4ALS #keepswinging

[Boge Golf @bogegolf]

The #Swing4ALS Challenge is here. It doesn’t matter what your swing is, all that matters is that you Keep Swinging.

Nominate 3 friends and tag @bogegolf and @iamalsorg for a chance to be reposted!

Good Luck!

[I AM ALS @iamalsorg]

We are glad to see that the FDA has scheduled a Type A meeting on January 11th to discuss the path forward for NurOwn. We hope that during this meeting they agree to hold an Advisory Committee Meeting so there is a transparent, public forum about NurOwn.
https://t.co/KnAJLrcrHU

[No More Excuses ALS Watchdogs! @als_now]

D-day for #NurOwn, and therefore the fate of so many current (and all future) #ALS patients is set: January 11th, 2023. No single decision has ever been as directly impactful or more important to #ALS patients than this. Why? Because #NUROWNWORKS #endals https://t.co/HbtifTIJpY

[Darren Rose @AAADRose]

ALS 👊🏼

[Brian Wallach @bsw5020]

In the last five years, ALS has changed everything for me except for one thing: I am still alive.

If you see this tweet, please retweet it with your version of the following: "In the last five years, ____ has changed everything for me except for one thing: I am still alive."

[I AM ALS @iamalsorg]

I AM ALS friend Dan handed off the NurOwn petition -- and all 802 pages of signatures -- to Dr. Peter Marks at the FDA today. To everyone who signed and shared: THANK YOU. #NoAdCommNoVoice

[Brian Wallach @bsw5020]

For those who posted or signed the petition below, we hit our goal of 30K signatures today.

Thank you for being the light.

https://t.co/K8YWFwlBnn

[No More Excuses ALS Watchdogs! @als_now]

These pALS and cALS will NOT quit. NME is so proud of every single pALS who contributed to another #drugsinbodies benchmark. Another 30k sign, with help from these groups + some amazing individual efforts. Awesome. @brainmatters10 #NUROWNWORKS @statnews
@biospace @WSJopinion

[ALS ACCESS @brainmatters10]

30,000 Done !! Never underestimate the power of a small group of people. We did this without the help of the Biggest in ALS. @PatriciaManhar1 @4Nurown @ApproveNurown @4Nurown @imonfiya7 @sherryquis @Elex_Michaelson @klink52 @zacbrownband @emilyakopp

[No More Excuses ALS Watchdogs! @als_now]

3/3 Intentionally omitting large, significant (p-.05) subgroups, and ignoring the same "flexibility" arguments made for "other" drugs in the past only hurts #ALS' future credibility. If not obvious yet, it sure appears pALS refuse to quit fighting. 30k more sigs, a MILLION total.

[Darren Rose @AAADRose]

Takes less than 60 seconds please sign and share. @SlaterMoJoe 👊🏼💪🏼

[I AM ALS @iamalsorg]

Every signature counts. Please sign and share this petition asking the FDA to hold an Advisory Committee meeting for NurOwn. #NoAdCommNoVoice

https://t.co/LXPVnkZZwX

[Darren Rose @AAADRose]

Less than a minute to save thousands of lives.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

29 yo Eric worked w #LAFD when dx'd w fatal #ALS

❤️Rcvd a #stemcell therapy #NurOwn
❤️Slowed his paralysis & improved his breathing
💔Can't get more w/o #FDA approval

⬇️Sign Petition to help Eric
https://t.co/S2NhIvuD3L

#AxeALS @stevens_nation
#firefighter #firefighters #EMT

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Before & After #NurOwn, @ThurmanTough

🚫Walk 1 mile →hiked 9 miles in WV hills
🚫 Lift gallon of paint →built block wall
🚫Open water bottle →baits hook & fletches arrows

⬇️SIGN PETITION to ask FDA for hearing
https://t.co/S2NhIvctPD

#NurOwnWorks

https://t.co/NB7qrx0w6R

[Brian Wallach @bsw5020]

Thank you to the 3,000 people who signed yesterday. I am grateful to and for you.

Right now, we're about 5,000 signatures away from our goal. If you have not signed, can you help all ALS patients send a clear message to FDA that we need an Advisory Committee for NurOwn.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Nothin' special about a #Dad & #daughter walking?

Matt's had #ALS for 4 yrs
He wants to live long enough that she remembers him

Matt got #NurOwn in EAP
His life depends on a public hearing where he & his #MAYO neurologists can share this evidence w FDA
@CBER

#GirlDad #EndALS

[Brian Wallach @bsw5020]

Two things this morning.

First, meet Josh. He is in the NurOwn expanded access program and has received 7 injections. His breathing score has gone up and, as you can see here, he is still walking on his own.

Second, Josh is but one of many reasons why we are asking the FDA...

[Smithstrongmom @Smithstrongmom1]

Josh was in #livingproof
#nurownworks

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Josh was dx'd w #ALS at 29 yo

When Josh gets #NurOwn:
▪️Paralysis slows
▪️Twitching stops
▪️Breathing improves

ALS kills in avg 3-5 yrs
But Josh is 4 yrs in & still walking

Sign petition so Josh can keep beating the odds!
https://t.co/S2NhIvuD3L

#LivingProof
#NoAdComNoVoice

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

@ImLolly713 @LisaLegacy4ALS @FDACBER @DrCaliff_FDA Oh I wish @JamieRoseBerry were here

I can just imagine her dancing up the stairs in 5 " heels, singing, rapping & making everyone smile. That's what she's doin' in heaven now!

I miss the hell out of our Baddass warrior
Hugs @ImLolly713 & @als_mama

As Jam would say F*ckALS

[No More Excuses ALS Watchdogs! @als_now]

Share this QR code to add your name to a letter (for free!) that asks @US_FDA to initiate approval of a potentially game changing new therapy to #ALS patients, as soon as possible in 2023. And it costs you nothing! @SlangsOnSports @cnn @ESPNStatsInfo @Buster_ESPN @ChicagoMaroon