Dr Goyal said trial data confirms patient experiences that NurOwn slowed progression & helped some regain function @neurology_live
My son Josh was in #NurOwn P3 trial
Josh regained function & his #neurologists, & #pulmonologist observed it too!
Great news on #Nurown AdComm being granted by the #FDACBER today.
It's time now to fight for approval. We have known that #NurownWorks for years. So many have died fighting for Nurown approval and access.
It's time to get Nurown approved & give HOPE to all with #ALS.
1 yr ago we were on a trip & I was walking w just a limp. Now full time w a walker, a shower chair & a bed rail so I can rollover. #NurOwn might have slowed that. I might just be using a cane now. @FDACBER@DrCaliff_FDA Your silence leaves us #DYINGWAITING#ALS@AP_FDAwriter
Sunny days are great days to raise ALS awareness! Everyone needs to know facts about ALS. I talk about it daily wherever, whenever, whoever. My sister lost her life & I would write it in the sky if I could... #endALS#ALSawareness#fuckALS@JamieRoseBerryy deserved HOPE 🌹🌙❤️🩹
.@US_FDA the #ALS community delivered you a petition to grant #NurOwn a transparent and informative AdCom three months ago. While we wait, people have died from this 100% fatal disease. Provide the flexibility & speed you promised for ALS.
Schedule. The. AdCom.