ACCESSCare Research: better care for LGBT+ people

Research to improve care for LGBT+ people facing serious/ advanced illness or bereavement. Views our own. ACCESSCare B: Marie Curie-funded, C: NIHR RfPB-funded

[ACCESSCare Research: better care for LGBT+ people @ACCESSCare_CSI]

Our research chosen for an NIHR Alert 👀👇🏽

[ACCESSCare Research: better care for LGBT+ people @ACCESSCare_CSI]

Talk by Polly Maxwell 👀 ‘Death and dying in the queer family’

[Lucy Selman @Lucy_Selman]

Our next @PEoLCSW Research Network meeting is on 20th Feb - another collection of great speakers and topics, including PhD presentations on queer families, hospital admission decisions, and equity in bereavement support. Register (free) at https://t.co/hf0SqiW2Jq

[Debbie Braybrook (she/her) @DEBraybrook]

Buzzing since co-design roundtable earlier, bringing together a brilliant group, with professional expertise & personal experience, to understand how evidence-based @ACCESSCare_CSI resources can be used in practice & avoid the virtual shelf✨ 🙏🏽 @mariecurie for supporting #impact

[RichardHarding @RHardingCSI]

Excited to be part of @ACCESSCare_CSI co-design workshop with stakeholders across UK for better LGBT+ palliative end-of-life care funded by @mariecurieuk advancing the evidence-based guidance: https://t.co/w0TxpO9S6c and https://t.co/LOpdk97SXR and https://t.co/vz4fdibVhQ

[Alexandra Pitman @DrAPitman]

@CSI_Linguist @CSI_KCL @ACCESSCare_CSI @mariecurieuk @socscimed #Loneliness featured as a frequent emotional response to the #bereavement (eg "Feel life very lonely and not worth going on. Have great friends and family but feel isolation, alone and a burden"). Our corpus linguistic analysis shows occurrences of the word #lonely in context:

[Alexandra Pitman @DrAPitman]

@CSI_Linguist @CSI_KCL @ACCESSCare_CSI @mariecurieuk @socscimed Rather than describing oscillating between loss and restoration orientation, as described in the Dual Process Model of grief, participants described a state of liminality. We viewed this liminal state as an interstice between loss and restoration in experiences of #grief.

[Alexandra Pitman @DrAPitman]

@CSI_Linguist @CSI_KCL @ACCESSCare_CSI @mariecurieuk @socscimed Although many of the #bereavement experiences described in our #qualitative dataset are accounted for in existing #grief theory, some participants described a liminal experience (a feeling of ‘not being anywhere’) that is not recognised within these established theories of grief.

[Katherine Bristowe @CSI_Linguist]

Really delighted and proud to see the latest of our @CSI_KCL @ACCESSCare_CSI @MarieCurieUK funded work published in @socscimed. This work advances theories of grief by highlighting the liminality some people experience following the death of a partner: https://t.co/mtB9vJizVz

[Debbie Braybrook (she/her) @DEBraybrook]

Feeling v. positive & looking forward to working with an incredible team of public representatives, healthcare professionals, community organisations, researchers & clinical academics
🤍🩷🩵🤎🖤❤️🧡💛💚💙💜
@drmbrady
@purpleliz2
@OUTpatientsUK
@LGBTfdn
@SBajwah
@kesleeman

[Debbie Braybrook (she/her) @DEBraybrook]

So excited to have recently had the kick-off meeting for the @mariecurieuk funded ACCESSCare-I(mpact) project working with to bridge the gap between @ACCESSCare_CSI research & practice @RHardingCSI @CSI_Linguist
https://t.co/nKM6zEQmZD

[OUTpatients 🏳️‍🌈🏳️‍⚧️ @OUTpatientsUK]

Our booklets co-produced with @macmillancancer are now available in print. Order copies for your information centre today!

[Debbie Braybrook (she/her) @DEBraybrook]

🫶🏽 to #EAPC2023 for providing vital space for brilliant colleagues to share their work with & for LGBTQ+ people in receipt of palliative & bereavement care. So incredible to finally meet up in real life & such a great audience (me=100% #fangirl) 🏳️‍🌈🏳️‍⚧️ So excited for what’s next 🤗

[Debbie Braybrook (she/her) @DEBraybrook]

Me, playing it cool next to my poster at #EAPC2023 @ACCESSCare_CSI 😆😬🫠

[ILGA-Europe @ILGAEurope]

Our #RainbowEurope Map 2023 is live, benchmarking 49 European countries on their legal and policy situation for LGBTI people. Check out https://t.co/aTIBONQOI3 now!

[Michael Brady @drmbrady]

Great to see the @ACCESSCare_CSI work on LGBT+ communication recognised by @BMJ_Qual_Saf in their list of top research for 2022. Not surprised - it’s great work. Well done all 👏🏽 👏🏽 #LGBTHealth 🏳️‍🌈🏳️‍⚧️ 👇🏾

[Debbie Braybrook (she/her) @DEBraybrook]

So wonderful to speak with the brilliant team at @StJoHospice today about the @ACCESSCare_CSI research. Thanks for the invite 🙂 And what a brilliant display for #LGBTplusHM 🏳️‍🌈🏳️‍⚧️

[Nursing, Midwifery & Palliative Care at King's 💙 @kingsnmpc]

Researchers interviewed 74 people, including LGBT+ people who were seriously ill, their significant others, and clinicians about #inclusive communication

👇Read about the 10 recommendations via the just published @NIHRevidence alert

https://t.co/fkCG2ZuWWy

[Cicely Saunders Institute at King's @CSI_KCL]

@CSI_KCL Paper of the Week! @ACCESSCare_CSI study shows that person-centred care requires inclusive communication from clinicians & organisations, that creates space for LGBT+ patients to talk about gender & sexual orientation if they want to 🏳️‍🌈🏳️‍⚧️https://t.co/mDQfiuXLB5