It’s rare disease day on Thur 29th Feb
Please support our charity & wear jeans (or blue) to school or work raising awareness of rare diseases & heping us fundraise for research into this rare disease that took our newborn baby David. 👖💙
https://t.co/ITuZPKiy1t
In the UK @Lakenutrition is talking to children today about #RareDiseaseDay & #ACD
Amelia runs @TDavidAshwellF in memory of baby David who had ACD
Schools are supporting us by wearing 👖 for genes!
https://t.co/keliAYKqVU
This group received a grant fundraised by families like us around the world who lost their baby to a deadly #raredisease#ACDMPV
It’s incredible to see the science progress at this rate
This group received a grant fundraised by families like us who lost their baby to a deadly #raredisease#ACDMPV
Overwhelmed to see the science moving towards a treatment for this fatal disease that affected our son David @ACDAssociation
Ten years today since our eldest baby boy David died aged 15 days
Ten years of trying to raise awareness & funds in his memory through this charity & @ACDAssociation for #ACD#Research
This year, I’ve run every day for the 15days of his turbulent life https://t.co/NR2bvMBUWz
Little Imogen has the same #raredisease (ACD) as our son David.
Imogen is unusual in that she’s a survivor & youngest lung #transplant recipient in UK
This week she started school!
Incredible ❤️
@TDavidAshwellF @roselock22 https://t.co/2nd4qhTQJa
Love you & miss you always my precious boy - 9 years & I ache for you today as much as I did the last time I kissed you goodnight - love from your mummy xxx #ForDavid#raredisease#ACD@ACDAssociation