ACDA

We are a group of parents throughout the world who have had a child with Alveolar Capillary Dysplasia (ACD).

[TheDavidAshwellFoundation @TDavidAshwellF]

It’s rare disease day on Thur 29th Feb

Please support our charity & wear jeans (or blue) to school or work raising awareness of rare diseases & heping us fundraise for research into this rare disease that took our newborn baby David. 👖💙

https://t.co/ITuZPKiy1t

[TheDavidAshwellFoundation @TDavidAshwellF]

#waveoflight2023 remembering David & too many precious babies taken too soon
#babylossawareness
#raredisease
@ACDAssociation

[TheDavidAshwellFoundation @TDavidAshwellF]

I’m wearing my 👖 for #RareDiseaseDay2023
Are you?

[Prof Amelia A Lake @Lakenutrition]

Tomorrow morning I will be chatting to Antony on the amazing #localradio @BBCTees 📻

Talking about #rarediseaseday2023 & what our small charity @TDavidAshwellF does to raise funds & awareness for #ACD #research @ACDAssociation

[ACDA @ACDAssociation]

@RachelleinMI @TDavidAshwellF @RareDiseases @RareDayUS Thank you for your support 💙❤️

[Rachelle @RachelleinMI]

Why am I wearing “jeans” today? (technically, a Jean dress!). And on a BOE meeting night? Because of my niece Phoebe & nephew Ronan, gone too soon due to the rare disease @ACDAssociation @TDavidAshwellF @RareDiseases @RareDayUS #always #jeansforgenes #RareDiseaseDay2022 #miched

[TheDavidAshwellFoundation @TDavidAshwellF]

They’ve got their 👖 on!
Raising money & awareness on #RareDiseaseDay for #ACD in memory of their big brother David.
#jeansforgenes #ForDavid
@ACDAssociation
(Yes that’s a cricket bat 🏏 😵‍💫)

[ACDA @ACDAssociation]

In the UK @Lakenutrition is talking to children today about #RareDiseaseDay & #ACD
Amelia runs @TDavidAshwellF in memory of baby David who had ACD
Schools are supporting us by wearing 👖 for genes!
https://t.co/keliAYKqVU

[ACDA @ACDAssociation]

This group received a grant fundraised by families like us around the world who lost their baby to a deadly #raredisease #ACDMPV
It’s incredible to see the science progress at this rate

[Cincinnati Children's @CincyChildrens]

Read more about an exciting application of #nanoparticle technology that improved survival in mice w/rare newborn disease. #ACDMPV #rarediseas Post: https://t.co/zewtlUpHfv Study @CircAHA : https://t.co/RLLZkhkRRC @CincyKidsHeart @CincyKidsGenomX @UCHealthNews @RareDiseases

[TheDavidAshwellFoundation @TDavidAshwellF]

This group received a grant fundraised by families like us who lost their baby to a deadly #raredisease #ACDMPV
Overwhelmed to see the science moving towards a treatment for this fatal disease that affected our son David @ACDAssociation

[TheDavidAshwellFoundation @TDavidAshwellF]

Thinking of so many incredible mothers I know who have experienced the loss of a child or children 🦋
#babyloss #ACDC
(Image from @ACDAssociation)

[TheDavidAshwellFoundation @TDavidAshwellF]

Ten years today since our eldest baby boy David died aged 15 days
Ten years of trying to raise awareness & funds in his memory through this charity & @ACDAssociation for #ACD #Research
This year, I’ve run every day for the 15days of his turbulent life https://t.co/NR2bvMBUWz

[ACDA @ACDAssociation]

One of our UK families #10forDavid

[TheDavidAshwellFoundation @TDavidAshwellF]

Approaching my son's 10th birthday and anniversary of his death and asking you to do #10forDavid to help us #fundraise for much needed #research into #ACD the #raredisease that affected him. #babyloss @TDavidAshwellF https://t.co/NR2bvMBUWz

[ACDA @ACDAssociation]

Our amazing president Eliza has put this together for this year’s #BabyLossAwarenessWeek
#Grief is....
https://t.co/ytRld20wn9
#WaveOfLight
#ACDAWaveOfLight

[TheDavidAshwellFoundation @TDavidAshwellF]

Perfect 🌈 this morning in school run for #BabyLossAwarenessWeek #ForDavid💙 @ACDAssociation #acd #RareDisease

[ACDA @ACDAssociation]

Little Imogen has the same #raredisease (ACD) as our son David.
Imogen is unusual in that she’s a survivor & youngest lung #transplant recipient in UK
This week she started school!
Incredible ❤️
⁦@TDavidAshwellF⁩ @roselock22 https://t.co/2nd4qhTQJa

[TheDavidAshwellFoundation @TDavidAshwellF]

Our charity along with @ACDAssociation has awarded a #research study into #ACD through @RareDiseases #ThankYou for all your fundraising contributions 💙#ForDavid
https://t.co/iV6qjlsDo6

[Prof Amelia A Lake @Lakenutrition]

Our small UK #charity @TDavidAshwellF along with @ACDAssociation has funded a new research grant through @RareDiseases into #ACD
ACD is a #raredisease affecting #newborns and took our eldest son David aged only 15 days
https://t.co/KQaVGp3YMq

[TheDavidAshwellFoundation @TDavidAshwellF]

Love you & miss you always my precious boy - 9 years & I ache for you today as much as I did the last time I kissed you goodnight - love from your mummy xxx #ForDavid #raredisease #ACD @ACDAssociation

[ACDA @ACDAssociation]

The #ACD families from around the world are so grateful to you all! Thank you! #RareDiseaseDay #TDAF

[Handcross Pre-Prep @HXP_PrePrep]

Today at school...we are wearing jeans in Pre-Prep @HandcrossPark to raise money for #RareDiseaseDay @TDavidAshwellF #TalesofHXP #HXPSecretGarden